Film Release: Bernadette!

by | Jun 11, 2012 | 4 comments

The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.”  The documentary, depicting the true-life experience of now 33 year old Bernadette Scarduzio, had its first screening on May 24th at the Bryn Mawr Film Institute in Pennsylvania.   The film offers the world a view into the challenges and difficulties of living with Charcot-Marie-Tooth disease (CMT).  Filmed over four years,  audiences are invited to join Bernadette’s journey and her transformation from  patient to advocate.  Bernadette and filmmaker Josh Taub intend to make CMT “a household word,” elevating the cause to a national and international level, hopefully paving the way for more research funding and ultimately a cure.

“Bernadette” was produced by Josh Taub of Run Amuck Productions and is now being submitted to film festivals.  Stay tuned to hear the latest news about the film and future showings.



Learn more on this topic

Related Blog Posts

Join the conversation

Leave a Comment


  1. Jori Reijonen

    What would it be like to live with a progressive degenerative disease? The documentary Bernadette explores the answer to this question as it depicts the life of Bernadette Scarduzio, a young adult with the little known hereditary neuropathy disease Charcot Marie Tooth (CMT).

  2. Jessica Purcell

    Can’t wait to see this. My 11 year old daughter has Charcot-Marie-Tooth (CMT) and has never been able to meet anyone else around us with it or have someone who can relate to what she goes through.

    • carol

      We hope that the film will reach as wide an audience as possible! We’ll keep posting any and all news, including showings, etc. Also, have you checked out the “Arlene On the Scene” book? Maybe your daughter would enjoy reading about another young woman with Charcot-Marie-Tooth (CMT).

  3. Jacquelyn Fisher

    This is amazing! So excited to see this since my husband and family have Charcot-Marie-Tooth (CMT)


Submit a Comment

Your email address will not be published. Required fields are marked *


Join for notifications on events, campaigns, & news