CATEGORIES: CMT Summit | Fashion and Products | Featured | Newly Diagnosed | Nutrition | Patient-Focused Research | Pediatrics & CMT | Research | Research and Critical Trials

7 Reasons You Can’t Miss the Nashville CMT Summit

by | Jan 28, 2025 | 0 comments

Mark your calendars for April 24–26, 2025, because the Nashville CMT Summit is bringing the ultimate blend of knowledge, community, and fun! Here are 7 reasons you absolutely need to be there:

Test & Try Mobility Aids: Explore the latest tools to keep you moving with confidence.

Nashville-Themed Welcome Party: Grab your cowboy hat and celebrate in true Music City style!

Pain & Fatigue Support: Discover strategies to feel your best and tackle life head-on.

Join the CMT Wearable Study: Be part of cutting-edge research in wearable technology.

CMT Speed-Friending: Build connections with others in the CMT community—because we’re stronger together.

Prepare for CMT Clinical Trials: Learn about upcoming trials and how you can make an impact.

Donate to the CMT Biobank: Your blood donation could help researchers find the next big breakthrough.

Visit cmtsummit.org for all the details and to register today!

We can’t wait to see you there. Let’s make this summit the best yet!

REGISTER TODAY

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Hot off the press

by | Feb 28, 2014 | | 0 Comments

It seems like almost weekly there is another new publication on CMT with interesting basic biology. While an earlier “Hot off the press” highlighted the work of Cherry and co-workers at the University of Texas Southwestern Medical Center who showed show that neurons lacking a gene for rab7 result in neuropathy.

New Study on CMT Type 2B

by | Feb 12, 2014 | | 6 Comments

If we are to learn more about CMT and the effectiveness of rehabilitation it is worth asking the patient and their caregiver. A recent Italian study by Padua et al recently described a survey of CMT patients and caregivers and their perspectives and perceptions of rehabilitation efficacy and needs.

Allison Moore is going to be published!

by | Sep 6, 2013 | , | 0 Comments

HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.

HNF and Wave Skater form a Partnership

by | Jun 24, 2013 | | 0 Comments

I (Allison Moore)  is amazed how life moves in such wondrous ways. My family has the good fortune to spend summers at a beautiful Long Island beach where my husband and boys enjoy riding the waves on boogie boards.

HNF-WVU-NIOSH Study update:

by | May 9, 2013 | | 0 Comments

We are pleased to update our readers on the progress of the WVU-NIOSH study, “A Bi-Directional Translational Model of Exercise Training in the Treatment of Charcot-Marie-Tooth Disease”

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