Join Bernadette and Estela for a Therma Pool therapy session and demo as they discuss the benefits of aquatic exercise for CMT and more!
Exercise has the potential to improve functional ability, independence, and quality-of-life for CMT patients.
A team of government researchers, including Dr. Robert Chetlin, have collaborated with Dr. Michael Sereda and Dr. Klaus Nave of the Max Planck Institute for Experimental Medicine (MPI) to successfully secure the CMT1A transgenic rat from MPI and establish a colony in the United States.
Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it. Born and raised near the coast in Galveston, Texas, Morgan, 26, has been a competitive runner and swimmer since she was little. Four years ago, she began participating in triathlons. In 2009, as an undergrad at the University of North Texas, Morgan and her partner, Sean Thompson started a Youth Triathlon Team for 7-14 year olds. Known as the North TX Tri Team, they have remained together and still compete.
The U.N. General Assembly has unanimously agreed to work toward curbing the risk factors of noncommunicable diseases(NCDs), including the four most common: diabetes, cardiovascular diseases, cancers and chronic respiratory diseases. Sedentary lifestyle, smoking, alcohol abuse and poor diet have been cited as the major risk factors to developing NCDs
We answer the most frequently asked questions about exercise for people with CMT.
In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.
Cast: Bernadette Scarduzio
Bernadette Scarduzio was born with the most common inherited disease that no one has ever heard of: Charcot Marie Tooth (CMT) syndrome. CMT is the number one hereditary neuropathy in the world, affecting 1 in 2,500 people or nearly 2.6 million worldwide.
In mid-October 2012, I had the opportunity to interview Bernadette Scarduzio (Bern). She is a lovely young woman who suffers from Charcot-Marie-Tooth
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
Read about parental concerns regarding physical therapies for children with Charcot-Marie-Tooth Disease.
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