HNF is proud to present “CMT Presents,” a virtual presentation series designed to spread awareness in the communities, companies, and groups closest to you!
Healing from the Inside Out – Self Love & CMT
The support group offers time to participate in a variety of both educations & open discussion meant to help everyone engage with others on similar journeys.
How do we honor the inevitable grief that comes with disability and establish healthy boundaries...
Clinical Trial Update for SORD Deficiency – Applied Therapeutics – Dr. Shoshana Shendelman
Joey’s family has a history of Charcot-Marie-Tooth, and he decided to get tested at the end of 2019. He learned at the age of 23 that he had CMT-1B and needed to adapt his way of life so that he could continue performing.
Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.
Setting healthy boundaries is part of self-care and self-respect. It is being assertive without the need to be aggressive. Healthy boundaries can help us define our uniqueness and our core. Boundaries are not just about getting what we want. It’s about getting to live our lives on our own terms.
Wheel The World is an accessibility booking platform for people with disabilities to book hotels and tours confidently.
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
Join us for this webinar as we learn more about Sorbitol Dehydrogenase (SORD) Deficiency