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WHAT IS CMT

Charcot-Marie-Tooth disease (CMT) is one of the most common inherited nerve disorders.

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TYPES OF CMT

Description of the most prevalent types of CMT.

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PATIENT RESOURCES

Helpful patient care resources for the treatment & management of CMT.

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CMT UPDATES

Read about CMT updates and the latest in CMT research. Access our archives since 2014.

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CMT CONNECT

Webinars. Empower, Educate, Connect.

CMT Research

TRIAD

Therapeutic Research In Accelerated Discovery TRIAD = Academia + Government + Industry

GRIN PATIENT REGISTRY

Why should you join GRIN?
It’s pretty simple…
We need YOU!

PEDIATRICS & CMT

CMT starts in infancy and lays dormant in the body until one day the symptoms start to appear.

Connect with us

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FDA

Providing real-world data to the FDA

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CLINICAL TRIALS

Part of HNF's mission is to advance and support clinical research and trials for CMT.

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PATIENT-FOCUSED RESEARCH

HNF has been conducting patient-focused research dating back to 2007.

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EMERGING TECHNOLOGIES

Built to get you more shares and more followers.

GENETIC TESTING - CMT GENIE

Wish there was an easy guide for genetic testing? Now there is!

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MOVEMENT IS MEDICINE™

The program offers adaptive free online classes for everyone!

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FACES OF CMT

Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT.

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INDUSTRY

Providing access to conduct Clinical Trials.

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HCPs/CENTERS OF EXCELLENCE

HNF has a national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community.

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RESEARCH FUNDING

HNF advances preclinical research as quickly as possible if it aligns with our key objectives

About HNF

OUR STORY

Supporting patients and families with critical information to improve quality of life, and funding research that will lead to treatments and cures.

FOUNDATION LEADERSHIP

HNF Board of Directors, Staff and the TRIAD Council.

990's & ANNUAL REPORTS

We rely on your donations as we advance our mission to deliver results to our CMT family community.

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Join Team CMT

Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).

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Ways to Give

HNF is a 501(c) 3 public charity enabling donors to support our mission safely. There are many ways to give.

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Amazon Wishlist

Ultimate wishlist of CMT-friendly products on Amazon to make life with CMT easier.

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CMT Shop

Donate While You Shop & Support CMT Awareness!

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GRIN Registry

Join the Global Registry for Inherited Neuropathies (GRIN) and help develop drugs, gene therapies, and clinical trials for CMT and other Inherited Neuropathies! We need YOU!

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Facebook Fundraiser

Create a Facebook Fundraiser to help raise funds for CMT research.
Make sure to choose, “Hereditary Neuropathy Foundation” as your non-profit.

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Celebrate your birthday with a purpose

Start a CMT Birthday Fundraiser! It's a super easy and great way to spread awareness and support CMT Research. Share to your page and let others know what CMT research means to you!

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Participate or Host an event

Participate in an HNF-hosted event or create your own. It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research.

CATEGORIES: CMT-Connect | Emotional and Mental Health | Webinars- Emotional and Mental Health

Healing from the Inside Out – Self Love & CMT

by Courtney | Mar 11, 2019 | 0 comments

In this webinar, we dive deep into the topic of self-love with Author, Occupational Therapist, and Healing Activator Laura Mayer.

Learn more about Laura’s work here

Find Laura’s book here

Learn more on this topic

emBRACE it™ Episode #43

by Courtney | Mar 28, 2023 | Emotional and Mental Health, Webinars - Podcasts | 0 Comments

How do we honor the inevitable grief that comes with disability and establish healthy boundaries...

SORD Webinar – Part 2 – Clinical Trial Update

by Courtney | Oct 9, 2022 | Applied Therapeutics, CMT Type - SORD Deficiency, CMT-Connect, CMT-Connect Webinars, Featured | 0 Comments

Clinical Trial Update for SORD Deficiency – Applied Therapeutics – Dr. Shoshana Shendelman

Real Talk with Joey Nicoletti

by Courtney | Sep 10, 2022 | CMT-Connect Webinars, Emotional and Mental Health, Webinars- Emotional and Mental Health | 0 Comments

Joey’s family has a history of Charcot-Marie-Tooth, and he decided to get tested at the end of 2019. He learned at the age of 23 that he had CMT-1B and needed to adapt his way of life so that he could continue performing.

How to get genetic Testing: The CMT Genie

by Courtney | Sep 10, 2022 | CMT-Connect, CMT-Connect Webinars, Featured, Genetic Testing, The CMT Genie, Webinars - Genetic Testing | 0 Comments

Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.

Setting Healthy Boundaries

by Courtney | Jul 12, 2022 | Emotional and Mental Health, Webinars- Emotional and Mental Health | 0 Comments

Setting healthy boundaries is part of self-care and self-respect. It is being assertive without the need to be aggressive. Healthy boundaries can help us define our uniqueness and our core. Boundaries are not just about getting what we want. It’s about getting to live our lives on our own terms.