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When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.
HNF is proud to have teamed up with Accessible College to help families and individuals with an introduction to the skills and tools needed to ensure a successful transition to and through higher education.
Dr. Phil may think that 100 out of 100 relationships involving caregiving fail, but we, and many more in our community, are proof he’s wrong!
Kundalini yoga is a holistic yoga that incorporates repetitive physical movement and sometimes static postures timed with breath-work, chanting, meditation, and relaxation.
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
Join us as we explore the power of Nutrition with CMT patient and Functional Medicine Coach Paul Fowler.
Join Estela & Amin as they discuss navigating online dating and relationships with CMT.
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
Join us as we dive deeper into the emerging practice of telemedicine with Neurologist Dr. Raghav Govindarajan of UM Healthcare.
Improve blood flow and learn about this holistic approach to increase oxygen and decrease toxins.
I just found this site is there a replay of this webinar. If so will you please email me the link and the upcoming webinars.
Hi Gloria, We do not have a replay of the webinar. We will have future webinars so check back often.
Thanks,
Courtney
I have HNPP. I found out early last year that there’s a Doctor in Tennessee that has been doing research on HNPP and has linked it to CMT. I still have all his research notes that brought he and his colleagues to this conclusion.
Hi I need to get disability for my CMT and other back issues. How difficult is it to get?
Best advice…go through a disability advocacy organization not an attorney. I tried on my own for over a year then found an advocacy group that specializes in only helping people get approved. Three months and two Dr appointments later I was approved without any stigmas…actually a very validating process. Their fee was 20% of any back payment but nothing going forward. Well worth it! Best wishes!
I hired an attorney that specializes in SSDI, between him and w/the help of my Dr. it took approximately 6 months to be approved and receive my 1st check.
Good Luck.