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We spoke with Paralympic swimmer, Jamal Hill about how he got started swimming, what it takes to make it to the Paralympics, his CMT journey and much more!
Join us for an introduction to Physical Therapy.
Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services.
Join Alana Kessler for this reflective and healing guided meditation.
Discuss the balance issues that accompany CMT and review some PT movements to promote improvement.
Join Brett Gray & Bernadette Scarduzio in their mission to bring accessibility to beaches across the US!
Therma Pool therapy session and demo as they discuss the benefits of aquatic exercise for CMT and more!
I just found this site is there a replay of this webinar. If so will you please email me the link and the upcoming webinars.
Hi Gloria, We do not have a replay of the webinar. We will have future webinars so check back often.
I have HNPP. I found out early last year that there’s a Doctor in Tennessee that has been doing research on HNPP and has linked it to CMT. I still have all his research notes that brought he and his colleagues to this conclusion.
Hi I need to get disability for my CMT and other back issues. How difficult is it to get?
Best advice…go through a disability advocacy organization not an attorney. I tried on my own for over a year then found an advocacy group that specializes in only helping people get approved. Three months and two Dr appointments later I was approved without any stigmas…actually a very validating process. Their fee was 20% of any back payment but nothing going forward. Well worth it! Best wishes!
I hired an attorney that specializes in SSDI, between him and w/the help of my Dr. it took approximately 6 months to be approved and receive my 1st check.