6 Comments

1. 

   Gloria on March 26, 2017 at 7:44 am

   I just found this site is there a replay of this webinar. If so will you please email me the link and the upcoming webinars.

   Reply
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     courtney on April 3, 2017 at 6:34 am

     Hi Gloria, We do not have a replay of the webinar. We will have future webinars so check back often.

     Thanks,
     Courtney

     Reply
2. 

   Cindy Heiderscheit on February 27, 2017 at 12:25 pm

   I have HNPP. I found out early last year that there’s a Doctor in Tennessee that has been doing research on HNPP and has linked it to CMT. I still have all his research notes that brought he and his colleagues to this conclusion.

   Reply
   • 

     Toni Moore on October 9, 2020 at 8:42 am

     Hi I need to get disability for my CMT and other back issues. How difficult is it to get?

     Reply
     • 

       Sally on April 1, 2021 at 6:57 am

       Best advice…go through a disability advocacy organization not an attorney. I tried on my own for over a year then found an advocacy group that specializes in only helping people get approved. Three months and two Dr appointments later I was approved without any stigmas…actually a very validating process. Their fee was 20% of any back payment but nothing going forward. Well worth it! Best wishes!

       Reply
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       Don Shaw on April 1, 2021 at 2:00 pm

       I hired an attorney that specializes in SSDI, between him and w/the help of my Dr. it took approximately 6 months to be approved and receive my 1st check.

       Good Luck.

       Reply