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Meet Christina Chambers, dancer, adventurer, advocate and Abiitity360 Instructor!
How do we tap into our joy, peace and best selves during a pandemic?
We speak with Ability360 Program Manager, Brielle Carter about her adaptive sports and recreation center specially designed for people with disabilities.
Join us for this educational webinar with Kinetic Research & Orthotist, Valarie O’Brien as we break down our unique CMT bracing needs
Join the HNF team as we navigate critical information on the COVID-19 as it pertains to the CMT community, especially those who live with existing respiratory weakness
In this webinar, we dive deep into the topic of self-love with Author, Occupational Therapist, and Healing Activator Laura Mayer.
Join us with Daniel Keebler of accessibleGO.com a wonderful website connecting the disability community with accessible travel across the country and beyond.
Get the most out of your exercise! Join Estela and expert, Chris Dito (CMT patient and biomechanics specialist) as they discuss the dos and don’ts of exercising.
The INSPIRE App is live, and we’re sharing a behind-the-scenes look at how it works to improve the CMT Community!
CMT&Me is an observational, non-interventional study, sponsored by Pharnext, to collect Real-World Evidence (RWE) from people living with CMT.
I just found this site is there a replay of this webinar. If so will you please email me the link and the upcoming webinars.
Hi Gloria, We do not have a replay of the webinar. We will have future webinars so check back often.
Thanks,
Courtney
I have HNPP. I found out early last year that there’s a Doctor in Tennessee that has been doing research on HNPP and has linked it to CMT. I still have all his research notes that brought he and his colleagues to this conclusion.
Hi I need to get disability for my CMT and other back issues. How difficult is it to get?
Best advice…go through a disability advocacy organization not an attorney. I tried on my own for over a year then found an advocacy group that specializes in only helping people get approved. Three months and two Dr appointments later I was approved without any stigmas…actually a very validating process. Their fee was 20% of any back payment but nothing going forward. Well worth it! Best wishes!
I hired an attorney that specializes in SSDI, between him and w/the help of my Dr. it took approximately 6 months to be approved and receive my 1st check.
Good Luck.