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What does an accessible home look like? Join us for this fun and CMT-friendly home tour complete with their favorite spaces, tips and products
Inclusively is an employment platform for job seekers with disabilities and goes beyond a candidate’s background, matching their experience, skills, and accommodations needed to succeed in the role.
Join us for this webinar as we learn more about Sorbitol Dehydrogenase (SORD) Deficiency
Dating, relationships, and intimacy play significant roles in the human experience.
Learn more about the ins and outs of Adaptive Driving with Bernadette Scarduzio.
What are our disability rights at work, school & society in general? When it comes to CMT, learning our rights can seem like a daunting and intimidating endeavor.
Learn about how Canine Companions paired these best friends together and how Marvin makes Diana’s life easier and sweeter.
When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.
HNF is proud to have teamed up with Accessible College to help families and individuals with an introduction to the skills and tools needed to ensure a successful transition to and through higher education.
Dr. Phil may think that 100 out of 100 relationships involving caregiving fail, but we, and many more in our community, are proof he’s wrong!
I just found this site is there a replay of this webinar. If so will you please email me the link and the upcoming webinars.
Hi Gloria, We do not have a replay of the webinar. We will have future webinars so check back often.
I have HNPP. I found out early last year that there’s a Doctor in Tennessee that has been doing research on HNPP and has linked it to CMT. I still have all his research notes that brought he and his colleagues to this conclusion.
Hi I need to get disability for my CMT and other back issues. How difficult is it to get?
Best advice…go through a disability advocacy organization not an attorney. I tried on my own for over a year then found an advocacy group that specializes in only helping people get approved. Three months and two Dr appointments later I was approved without any stigmas…actually a very validating process. Their fee was 20% of any back payment but nothing going forward. Well worth it! Best wishes!
I hired an attorney that specializes in SSDI, between him and w/the help of my Dr. it took approximately 6 months to be approved and receive my 1st check.