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WHAT IS CMT

Charcot-Marie-Tooth disease (CMT) is one of the most common inherited nerve disorders.

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TYPES OF CMT

Description of the most prevalent types of CMT.

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PATIENT RESOURCES

Helpful patient care resources for the treatment & management of CMT.

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CMT UPDATES

Read about CMT updates and the latest in CMT research. Access our archives since 2014.

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CMT CONNECT

Webinars. Empower, Educate, Connect.

CMT Research

TRIAD

Therapeutic Research In Accelerated Discovery TRIAD = Academia + Government + Industry

GRIN PATIENT REGISTRY

Why should you join GRIN?
It’s pretty simple…
We need YOU!

PEDIATRICS & CMT

CMT starts in infancy and lays dormant in the body until one day the symptoms start to appear.

Connect with us

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FDA

Providing real-world data to the FDA

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CLINICAL TRIALS

Part of HNF's mission is to advance and support clinical research and trials for CMT.

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PATIENT-FOCUSED RESEARCH

HNF has been conducting patient-focused research dating back to 2007.

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EMERGING TECHNOLOGIES

Built to get you more shares and more followers.

GENETIC TESTING - CMT GENIE

Wish there was an easy guide for genetic testing? Now there is!

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MOVEMENT IS MEDICINE™

The program offers adaptive free online classes for everyone!

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FACES OF CMT

Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT.

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INDUSTRY

Providing access to conduct Clinical Trials.

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HCPs/CENTERS OF EXCELLENCE

HNF has a national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community.

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RESEARCH FUNDING

HNF advances preclinical research as quickly as possible if it aligns with our key objectives

About HNF

OUR STORY

Supporting patients and families with critical information to improve quality of life, and funding research that will lead to treatments and cures.

FOUNDATION LEADERSHIP

HNF Board of Directors, Staff and the TRIAD Council.

990's & ANNUAL REPORTS

We rely on your donations as we advance our mission to deliver results to our CMT family community.

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Join Team CMT

Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).

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Ways to Give

HNF is a 501(c) 3 public charity enabling donors to support our mission safely. There are many ways to give.

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Amazon Wishlist

Ultimate wishlist of CMT-friendly products on Amazon to make life with CMT easier.

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CMT Shop

Donate While You Shop & Support CMT Awareness!

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GRIN Registry

Join the Global Registry for Inherited Neuropathies (GRIN) and help develop drugs, gene therapies, and clinical trials for CMT and other Inherited Neuropathies! We need YOU!

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Facebook Fundraiser

Create a Facebook Fundraiser to help raise funds for CMT research.
Make sure to choose, “Hereditary Neuropathy Foundation” as your non-profit.

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Celebrate your birthday with a purpose

Start a CMT Birthday Fundraiser! It's a super easy and great way to spread awareness and support CMT Research. Share to your page and let others know what CMT research means to you!

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Participate or Host an event

Participate in an HNF-hosted event or create your own. It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research.

CATEGORIES: Awareness | Faces of CMT - Addie

Addie Video cover holding hands with adult

10yo Addie sings her version of Try by Pink to raise awareness of CMT

by Courtney | Jan 20, 2020 | 0 comments

Addie has a rare disease called Charcot Marie Tooth.

She rewrote Try by Pink into a song about her disease and recorded it to raise awareness.

Her nonprofit Addie’s All Stars raises money to help fund research for a cure.

Learn more on this topic

Charcot-Marie-Tooth Awareness: In the News!

by Courtney | Dec 15, 2011 | Awareness | 24 Comments

NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF’s most prominent partners who is the subject of an upcoming documentary, Bernadette.