Addie Video cover holding hands with adult

10yo Addie sings her version of Try by Pink to raise awareness of CMT

by | Jan 20, 2020 | 0 comments

Addie has a rare disease called Charcot Marie Tooth.

She rewrote Try by Pink into a song about her disease and recorded it to raise awareness.

Her nonprofit Addie’s All Stars raises money to help fund research for a cure.

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Allison Moore is going to be published!

HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.

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