Addie has a rare disease called Charcot Marie Tooth.
She rewrote Try by Pink into a song about her disease and recorded it to raise awareness.
Her nonprofit Addie’s All Stars raises money to help fund research for a cure.
This November, the #GivingTuesday movement is running #MyGivingStory, a new storytelling contest...
The Hereditary Neuropathy Foundation is proud to continue our support of #GivingTuesday. Come join us on December 1st and participate in this globally recognized movement of giving and philanthropy.
Awareness FBWhile Charcot-Marie-Tooth Awareness Month officially comes to an end today, the Hereditary Neuropathy Foundation’s commitment to spreading CMT awareness carries on every single day of the year.
All you have to do is snap a selfie with #SeptemberSelfieCMT in the photo and share it on all your social media pages.
I knew the only way I was going to have a fighting chance against this still unknown disease was to give CMT a voice.
The study is a collection of over 80 intimate and candid interviews, painting a vivid picture of those living with CMT. These interviews brought to light a range of different experiences: from devastating and heart-wrenching, to courageous and inspiring.
The Hereditary Neuropathy Foundation is continuing their popular Text2Give campaign this year with the theme “Show Your Hands.”
HNF has featured a “CMT Weekly Warrior” for the past few months on our social media platforms. This has consisted of a photo and summary to celebrate the brave individuals living with CMT.
Visit one of these locations on the designated day and present the flyer to your server and HNF will receive 20% off the sales that will fund CMT research.
HNF has partnered with Inspire to provide a safe online health and wellness community in which patients, families, friends, and caregivers connect with one another for support and information.
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