CATEGORIES: Other Events | Team CMT Members

Set Sail For CMT: Saturday June 17, 2017

by Courtney | Mar 25, 2017 | 0 comments

On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items. Enjoy three levels of dancing, full-service bars, lounges, floor to ceiling windows and walk-around decks all while helping patients and families affected by CMT.

All proceeds will go towards the Therapeutic Research in Accelerated Discovery (TRIAD) program, a collaborative effort with academia, government and industry, to develop treatments for CMT.

For more information and to register: http://weblink.donorperfect.com/setsailcmt

Questions? [email protected]

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Team CMT leader finishes second at Boston Marathon

by Courtney | Apr 23, 2012 | TCS New York City Marathon, Team CMT Members | 1 Comment

Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16!

Di Billick Runs 10k for Team CMT

by Courtney | Apr 20, 2012 | Team CMT Members | 1 Comment

Di also did something special for Team CMT. “I took my body to the absolute limit yesterday, Sunday, April 15th, in honor of Chris Wodke’s Boston Marathon run which took place the next day. I walked (no jogging or running) in one direction and had my husband pick me up when I couldn’t go any further.”

Coaching Athletes with Charcot-Marie-Tooth

by Courtney | Apr 17, 2012 | Team CMT Members | 1 Comment

Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it.

April 16, 2012: Team CMT Leader to Run Boston Marathon

by Courtney | Mar 31, 2012 | TCS New York City Marathon, Team CMT Members | 1 Comment

As manager of Team CMT and in partnership with The Hereditary Neuropathy Foundation, Chris intends to use this opportunity to raise awareness about CMT on a grander scale.

Personal Profile: Di Billick–Actress, Model, Inspiration

by Courtney | Mar 26, 2012 | Team CMT Members | 9 Comments

“I call Charcot-Marie-Tooth a blind disease because you can’t see it. People say I look fine and can’t understand that I have a problem.

Personal Stories: Barb Vonada, triathlete, veteran and more!

by Courtney | Mar 26, 2012 | Team CMT Members | 0 Comments

Recently, the 42 year old mom of three joined Team CMT- Richmond hoping to spread awareness and raise funds for research and a cure.

Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser

by Courtney | Mar 13, 2012 | TCS New York City Marathon, Team CMT Members | 0 Comments

The Richmond, Va branch of Team CMT, Richmond, VA will participate in the American Family Fitness Half Marathon on Saturday, November 10, 2012. Team CMT will be running on behalf of the Hereditary Neuropathy Foundation to raise awareness of Charcot-Marie-Tooth disease.

Spotlight on the Mattheiss Family

by Courtney | Feb 24, 2012 | Team CMT Members | 0 Comments

Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community.

Running Marathons to Raise Awareness of Charcot-Marie-Tooth

by Courtney | Nov 17, 2011 | TCS New York City Marathon, Team CMT Members | 3 Comments

“America’s Friendliest Marathon,” held in Richmond, VA this past weekend, included some important friends of the Hereditary Neuropathy Foundation who ran to raise awareness of Charcot-Marie-Tooth and to generate funds for research to find a cure.

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Set Sail For CMT: Saturday June 17, 2017

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