CATEGORIES: Other Events | Team CMT Members

Set Sail For CMT: Saturday June 17, 2017

by Courtney | Mar 25, 2017 | 0 comments

On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items. Enjoy three levels of dancing, full-service bars, lounges, floor to ceiling windows and walk-around decks all while helping patients and families affected by CMT.

All proceeds will go towards the Therapeutic Research in Accelerated Discovery (TRIAD) program, a collaborative effort with academia, government and industry, to develop treatments for CMT.

For more information and to register: http://weblink.donorperfect.com/setsailcmt

Questions? [email protected]

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Meet your Team CMT Manager

by Courtney | Apr 1, 2013 | Team CMT Members | 0 Comments

I was diagnosed with CMT type 1a in August of 2010. I was relieved to put a name to symptoms I’ve had my whole life.

NYC bike ride to highlight rare neurological disorder

by Courtney | Feb 25, 2013 | Bike New York, Team CMT Members | 0 Comments

Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.

HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014

by Courtney | Feb 9, 2013 | Bike New York, Past Events, Team CMT Members | 0 Comments

HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour

TEAM CMT & CHRIS WODKE

by Courtney | Feb 1, 2013 | Featured, Team CMT Members | 0 Comments

Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.

Running for Three Generations with CMT

by Courtney | Dec 3, 2012 | Team CMT Members | 0 Comments

These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease

Joe Torello, Music Man

by Courtney | Oct 4, 2012 | TCS New York City Marathon, Team CMT Members | 2 Comments

While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.

Team CMT: Monthly Family 5K Fun Run

by Courtney | Jul 12, 2012 | Past Events, Team CMT Members | 0 Comments

Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.

Personal Profile: Alyson O’Connor, Fitness Instructor & Volunteer Fire Fighter

by Courtney | Jul 12, 2012 | Team CMT Members | 0 Comments

A volunteer fire fighter for eight years, Alyson has managed to stay active, in spite of her CMT symptoms.

Team CMT Leader to Run Boston Marathon

by Courtney | Jun 13, 2012 | Team CMT Members | 1 Comment

When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”

A Great Ride at Bike New York

by Courtney | May 13, 2012 | Bike New York, Past Events, Team CMT Members | 0 Comments

“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th

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Set Sail For CMT: Saturday June 17, 2017

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