CATEGORIES: Other Events | Team CMT Members

Set Sail For CMT: Saturday June 17, 2017

by Courtney | Mar 25, 2017 | 0 comments

On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items. Enjoy three levels of dancing, full-service bars, lounges, floor to ceiling windows and walk-around decks all while helping patients and families affected by CMT.

All proceeds will go towards the Therapeutic Research in Accelerated Discovery (TRIAD) program, a collaborative effort with academia, government and industry, to develop treatments for CMT.

For more information and to register: http://weblink.donorperfect.com/setsailcmt

Questions? [email protected]

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Bike NY Spotlight: Kristin Gelzins

by Courtney | Mar 10, 2015 | Bike New York, CMT Update, Team CMT Members | 3 Comments

I am signing up for my VERY FIRST Five Boro Bike Tour. I need your help to find a cure for CMT. Please consider donating to my fundraising page to help me, my family and everyone living with CMT

Team CMT Takes on the Bermuda Triple Challenge

by Courtney | Mar 10, 2015 | CMT Update, Team CMT Members | 0 Comments

Meet Team CMT member Bill Morgan. Bill and Liz (his wife) recently ran three races back to back in Bermuda for Team CMT.

Sunday May 1, 2016: 2016 TD Bank Five Boro Bike Tour

by Courtney | Jan 28, 2015 | Bike New York, Team CMT Members | 0 Comments

HNF is thrilled to have been chosen for the fifth year as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour.

Join Team CMT – Be a part of finding a cure!

by Courtney | Aug 19, 2014 | CMT Update, Team CMT Members | 2 Comments

You can join us, and truly make a difference. Register to be a Team CMT member and you’ll be part of an international effort to change the future for those living with CMT.

Meet Elizabeth Stenz, Team CMT Member

by Courtney | Aug 19, 2014 | CMT Update, Team CMT Members | 0 Comments

Her sister was diagnosed with CMT when she was 14, and since then her and many family members have become very familiar with the disease and have worked to raise awareness.

Grab Your Shoes and Spin CRANK Style NYC!

by Courtney | Aug 19, 2014 | CMT Update, Team CMT Members | 0 Comments

Dust off those spin shoes and come out to CRANK NYC (Upper East Side – 1658 Third Avenue) Saturday, September 27, 2014 from 1pm to 3pm and Spin-For-A- Cure!

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

by Courtney | Jun 19, 2014 | PT and Exercise, Team CMT Members | 0 Comments

In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.

Member Alyson O’Connor Won’t Let Her CMT Stop Her!

by Courtney | May 21, 2014 | Team CMT Members | 1 Comment

Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.

Saturday September 27, 2014: Spin for the Cure New York City

by Courtney | May 11, 2014 | Spin-a-thon, Team CMT Members | 0 Comments

Grab your shoes and spin CRANK Style NYC!
When: Saturday, September 27, 2014
Where: 1658 3rd Avenue New York, NY 10128 (between 92nd & 93rd Street Upper East Side)
Time: 1:00 – 3:00 pm

November 15, 2014: Havana Nights Fundraiser

by Courtney | May 10, 2014 | Past Events, Team CMT Members | 0 Comments

Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.

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Set Sail For CMT: Saturday June 17, 2017

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