Making a difference in the CMT Community
On May 3rd I will be in New York and participate in the TD Five Boro Bike Tour. I will be riding with Team CMT to raise awareness and help in finding a cure for CMT
Learn more on this topic
Related Blog Posts
Q & A with Andy Heck
Our Q&A for the Winter CMT Update is Andy Heck. Andy has been diagnosed with Charcot-Marie-Tooth since four and doesn’t let CMT stop him for living his life to the fullest!
Charcot-Marie-Tooth Frequently Asked Questions
Charcot-Marie-Tooth Frequently Asked Questions: Learn more about the most commonly inherited peripheral neuropathy affecting approximately 1 in 2500 adults.
Living with CMT: Key Topics
There are a number of adaptive aids that can help make everyday tasks easier. This section lists just a few of them. Some of these items can be adapted from materials at home, others must be purchased.
Embrace the Brace: A Mother’s Perspective on Helios
We had the highest of hopes that these custom braces would be the difference between night and day for Dakota.
From the words of a CMT Hero
“FAITH, LOVE AND HOPE KEEPS TIMMY DIXON GOING!”
I often wonder what it’s like to be like everyone else out there. How great it would be to do things most consider easily accessible and within reach. I believe in myself; it’s not really about that. Sometimes I just feel alone, cold, and bitter after considering life in general. Then I ponder a thought: there are too many hurdles I’ve already jumped over
One Woman’s Success with Surgery
Read about how this CMT patient endured seven surgeries over the past dozen years to cope with the effects of CMT.
Personal Profile: Wendy Lowe, Nurse: Trauma Surgical Intensive Care Unit
As a little girl, growing up with Charcot-Marie-Tooth Disease (CMT), Wendy Lowe spent a lot of time in the hospital.
Expert Q and A: Orthopedic Surgeon, Dr. Glenn Pfeffer
Learn more from orthopedic surgeon Glenn Pfeffer, MD about surgery and CMT patients.
More Magazine features story on Charcot-Marie-Tooth
A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.
0 Comments