The Un-selfie4CMT Campaign!

by | Aug 19, 2014 | 2 comments

SelfieHNF introduces our latest initiative to reach millions of people worldwide and raise money for CMT research using Text2give.

The Un-selfie4CMT campaign is not about disability. It is about celebrating and sharing our passions for the activities we are blessed enough to enjoy. We want to encourage others to take a moment of reflection and gratitude for the activities their bodies allow them to do, whether it is playing with their young children, preparing a delicious meal, painting, swimming, running, gardening, dancing, weightlifting. These activities are gifts and should be recognized as so.

Charcot-Marie-Tooth (CMT) is only one of the many diseases that threaten and effect the passions we sometimes take for granted, and it is a disease that has been in the shadows for far too long. Even though the 2.6 million people suffering with CMT exceeds the 2.3 million people affected with Multiple Sclerosis (MS), there is much less awareness about our disease, and substantially less funding for research towards treatments and a cure.

We have the power to change this…let’s put social media to work and celebrate our individual passions with action.

Its quite simple:

1. Download and print the unselfie flyer at

2. Fill in what you are passionate about, take your unselfie

3. Upload your unselfie at

4. Please don’t wait, download your photo today 
at as HNF prepares for the launch of Un-selfie4CMT campaign on September 1st.

The Hereditary Neuropathy Foundation thanks Estela Lugo, the brains behind the Un-selfie4CMT Campaign. Estela was first introduced to HNF in 2009 when her physical trainer showed her a copy of a recent HNF Newsletter. Estela’s trainer was also the trainer for Allison Moore, the Founder and CEO of HNF, who shares with Estela the common struggle of living with CMT. Estela has been actively spreading awareness via social media, fundraising, and participating in local events. Let’s 
 so we can be 

Text CMT to 501501 to donate $10 and
then share your un-selfie on social
media! #UnSelfie4CMT

Learn more on this topic

Related Blog Posts

Accepting Myself for Who I Am

Growing up, I always knew I was different than my friends. I couldn’t run fast, tripped often (the scars on my knees are a reminder), was lousy at any sports-related activity, and was generally weak and uncoordinated.

The Long Road to Diagnosis Renews Dedication to Advocacy

The Long Road to Diagnosis Renews Dedication to Advocacy

Growing up we called it “Steffi disorder.” My friends and family were as baffled as my expert neurologists. I had been diagnosed with typical Spiral Muscular Atrophy (SMA) as a toddler but never followed its progression; I never seemed to get weaker. My myriad of symptoms was distinctly different than anyone else’s I had ever met in a lifetime living in the neuromuscular community. I thought I might never find my true diagnosis, let alone others who share it with me.

A New Mouse Model for Charcot-Marie-Tooth (CMT2)

We were recently informed that The Jackson Laboratory (JAX, a nonprofit biomedical research institution headquartered in Bar Harbor, Maine) had taken delivery and will be distributing a newly generated CMT-related mouse model. The new model expresses mutant mitofusin 2, a mitochondrial membrane protein involved in mitochondrial fusion and regulation of vascular smooth muscle cell proliferation.

Sixth Annual Card Party Brunch

On January 23, 2015 dedicated H.E.L.P. (Help Elliot Live Proud) Fund supporters participated in the 6th Annual Card Party Brunch and Boutique at Broken Sound County Club, Boca Raton, Florida. Record numbers flocked into the picturesque country club for a day filled with gourmet food, raffles, cards and a silent auction! HNF Board member Iris Adler increased this event by 50 new faces this year!

Join the conversation

Leave a Comment


  1. Mel H

    Which organization is the money going to?

    • courtney

      The money is going to research for Charcot-Marie-Tooth.


Submit a Comment

Your email address will not be published. Required fields are marked *


Join for notifications on events, campaigns, & news