The Un-selfie4CMT campaign is not about disability. It is about celebrating and sharing our passions for the activities we are blessed enough to enjoy. We want to encourage others to take a moment of reflection and gratitude for the activities their bodies allow them to do, whether it is playing with their young children, preparing a delicious meal, painting, swimming, running, gardening, dancing, weightlifting. These activities are gifts and should be recognized as so.
Charcot-Marie-Tooth (CMT) is only one of the many diseases that threaten and effect the passions we sometimes take for granted, and it is a disease that has been in the shadows for far too long. Even though the 2.6 million people suffering with CMT exceeds the 2.3 million people affected with Multiple Sclerosis (MS), there is much less awareness about our disease, and substantially less funding for research towards treatments and a cure.
We have the power to change this…let’s put social media to work and celebrate our individual passions with action.
Its quite simple:
1. Download and print the unselfie flyer at www.cure.org/unselfies4cmt-campaign/
2. Fill in what you are passionate about, take your unselfie
3. Upload your unselfie at http://us2e.com/hnf/
4. Please don’t wait, download your photo today at http://us2e.com/hnf/ as HNF prepares for the launch of Un-selfie4CMT campaign on September 1st.
The Hereditary Neuropathy Foundation thanks Estela Lugo, the brains behind the Un-selfie4CMT Campaign. Estela was first introduced to HNF in 2009 when her physical trainer showed her a copy of a recent HNF Newsletter. Estela’s trainer was also the trainer for Allison Moore, the Founder and CEO of HNF, who shares with Estela the common struggle of living with CMT. Estela has been actively spreading awareness via social media, fundraising, and participating in local events. Let’s all be CHAMPIONS, so we can be WINNERS this September!
Text CMT to 501501 to donate $10 and
then share your un-selfie on social