Meet Traci Williams, HNF’s newest Movement is Medicine™ Ambassador. Traci lives in Montreal, Canada, and was born with CMT1A. Diagnosed as a child (now in her 50s), she was told she would permanently be in a wheelchair by the age of 20. At 19, she was introduced to yoga and realized she had been meditating naturally on her own about a decade before that. “Having a Type A personality, yoga bored me, but my body, even with pain, wanted to do it… and I listened”. She has been teaching since 2011 and now has over 500 hours of related training, including in-depth anatomy and physiology! Kundalini yoga is a holistic yoga that incorporates repetitive physical movement and sometimes static postures timed with breathwork, chanting, meditation, and relaxation. It is believed to work directly on the nervous system, glands, and chakra system (the body’s energy centers, which largely correspond with the plexuses—bundles of nerves along the spinal cord). “I personally believe strongly in the mind-body-and-spirit connection, so my favorite yoga is Kundalini yoga along with yoga Nidra”.

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Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it. Born and raised near the coast in Galveston, Texas, Morgan, 26, has been a competitive runner and swimmer since she was little. Four years ago, she began participating in triathlons. In 2009, as an undergrad at the University of North Texas, Morgan and her partner, Sean Thompson started a Youth Triathlon Team for 7-14 year olds. Known as the North TX Tri Team, they have remained together and still compete.

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.

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