CATEGORIES: CMT-Connect | Legal Rights and Benefits | Living with CMT | Webinars - Legal Rights and Benefits

CMT & Finances

by Courtney | Apr 11, 2018 | 0 comments

Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services. Strategies on planning for home-care services, Social Security, Disability Benefits, wills, trusts and college were covered along with many other areas and attendee questions. HNF also announced its brand new State Resource Page with contact information for all state offices and programs.

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CMT THRIVE Webinar – Cannabis & Neuropathy Webinar

by Courtney | Apr 12, 2022 | Cannabis, CMT-Connect, Webinars - Cannabis, Webinars - FEATURED | 1 Comment

Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.

What is SORD Deficiency: Part 2

by Courtney | Mar 11, 2022 | Applied Therapeutics, CMT-Connect, Research, Webinars - Research and Clinical Trials | 0 Comments

Join us for this webinar as we learn more about Sorbitol Dehydrogenase (SORD) Deficiency

CMT Thrive Summit – Dating with a Disability

by Courtney | Mar 10, 2022 | CMT-Connect, Dating and Relationships, Webinars - Dating and Relationships | 0 Comments

Dating, relationships, and intimacy play significant roles in the human experience.

Know Your Disability Rights

by Courtney | Jan 12, 2022 | Inclusive Employment, Legal Rights and Benefits, Webinars - Inclusive Employment, Webinars - Legal Rights and Benefits | 0 Comments

What are our disability rights at work, school & society in general? When it comes to CMT, learning our rights can seem like a daunting and intimidating endeavor.

CMT & Canine Companions

by Courtney | Jan 11, 2022 | Canine Companions, CMT-Connect, Webinars - Canine Companions | 0 Comments

Learn about how Canine Companions paired these best friends together and how Marvin makes Diana’s life easier and sweeter.

CMT Family Planning Webinar – Part 1: IVF & CMT

by Estela Lugo | Oct 19, 2021 | CMT-Connect, Family Planning, Webinars - Family Planning | 0 Comments

When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.

Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT

by Estela Lugo | Oct 19, 2021 | Awareness, Featured, Living with CMT | 10 Comments

Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:

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