CATEGORIES: CMT-Connect | Legal Rights and Benefits | Living with CMT | Webinars - Legal Rights and Benefits

CMT & Finances

by Courtney | Apr 11, 2018 | 0 comments

Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services. Strategies on planning for home-care services, Social Security, Disability Benefits, wills, trusts and college were covered along with many other areas and attendee questions. HNF also announced its brand new State Resource Page with contact information for all state offices and programs.

Learn more on this topic

She is at it, again! Jenny Decker’s “Just a Lap” circumnavigating the globe

by Courtney | Feb 23, 2023 | Faces of CMT, Featured, Living with CMT | 0 Comments

She is at it, again! Jenny Decker’s “Just a Lap” circumnavigating the globe In 2016, Jenny kayaked...

SORD Webinar – Part 2 – Clinical Trial Update

by Courtney | Oct 9, 2022 | Applied Therapeutics, CMT Type - SORD Deficiency, CMT-Connect, CMT-Connect Webinars, Featured | 0 Comments

Clinical Trial Update for SORD Deficiency – Applied Therapeutics – Dr. Shoshana Shendelman

The Key Role CMT Patients Play in Research

by Courtney | Sep 16, 2022 | GRIN Patient Registry, Living with CMT, Research and Critical Trials, Webinars - Research and Clinical Trials | 0 Comments

Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.

Applying for Social Security Disability 101

by Courtney | Sep 13, 2022 | Legal Rights and Benefits, Webinars - Legal Rights and Benefits | 1 Comment

The Social Security Administration (SSA) doesn’t make it easy for those with CMT to get the Social Security Disability Benefits they deserve.

How to get genetic Testing: The CMT Genie

by Courtney | Sep 10, 2022 | CMT-Connect, CMT-Connect Webinars, Featured, Genetic Testing, The CMT Genie, Webinars - Genetic Testing | 0 Comments

Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.

Moving Away From Perfectionism

by Estela Lugo | Jun 8, 2022 | Living with CMT | 0 Comments

The American Psychological Association (APA) understands perfectionism as the tendency to expect flawless performance from others or oneself over what the situation requires.

CMT THRIVE Summit Webinar – Wheel Around the World

by Courtney | Apr 12, 2022 | Accessible Travel, CMT-Connect, Webinars - Accessible Travel | 0 Comments

Wheel The World is an accessibility booking platform for people with disabilities to book hotels and tours confidently.

CMT THRIVE Webinar – Cannabis & Neuropathy Webinar

by Courtney | Apr 12, 2022 | Cannabis, CMT-Connect, Webinars - Cannabis, Webinars - FEATURED | 1 Comment

Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.

What is SORD Deficiency: Part 2

by Courtney | Mar 11, 2022 | Applied Therapeutics, CMT-Connect, Research, Webinars - Research and Clinical Trials | 0 Comments

Join us for this webinar as we learn more about Sorbitol Dehydrogenase (SORD) Deficiency

CMT Thrive Summit – Dating with a Disability

by Courtney | Mar 10, 2022 | CMT-Connect, Dating and Relationships, Webinars - Dating and Relationships | 0 Comments

Dating, relationships, and intimacy play significant roles in the human experience.

WHAT IS CMT

TYPES OF CMT

PATIENT RESOURCES

CMT UPDATES

CMT CONNECT

CMT Research

TRIAD

GRIN PATIENT REGISTRY

PEDIATRICS & CMT

WHAT IS MITO

TYPES OF MITOS

MITO Faces

MITO Research

TRIAD - Mito

GRIN PATIENT REGISTRY

PEDIATRICS & MITO CMT

FDA

CLINICAL TRIALS

PATIENT-FOCUSED RESEARCH

EMERGING TECHNOLOGIES

GENETIC TESTING - CMT GENIE

MOVEMENT IS MEDICINE™

FACES OF CMT

INDUSTRY

HCPs/CENTERS OF EXCELLENCE

RESEARCH FUNDING

About HNF

OUR STORY

FOUNDATION LEADERSHIP

990's & ANNUAL REPORTS

Join Team CMT

Ways to Give

Amazon Wishlist

CMT Shop

GRIN Registry

Facebook Fundraiser

Celebrate your birthday with a purpose

Participate or Host an event

Make A Donation Today

Click here if the donation form does not display below.

CMT & Finances

Learn more on this topic

Related Blog Posts

Join the conversation

Leave a Comment

0 Comments

Submit a Comment Cancel reply

Newsletter

Join for notifications on events, campaigns, & news

Success!