Team CMT
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Meet your Team CMT Manager: Meet your Team CMT Manager
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CMT is the unsolvable problem I carry in my heart. I didn't even know how to pronounce it Read More... -
School Outreach Program and Team CMT Kids: Arlene is going to Dallas!
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TEAM CMT & CHRIS WODKE: Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration. Founder Chris Wodke created Team CMT in January 2011 s Read More... -
HNF Charity Partner: TD Five Boro Bike Tour May 5, 2013:
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Joe Torello, Music Man: Joe Torello is not an easy man to keep up with. The 31 year old actor, singer and dancer has performed in 47 of the 50 United States. Most recently he could be found in New York. That is, when he wa Read More...
How can I get involved?
- Join Team CMT to participate in events and raise funds
- Get your school involved by joining Team CMT Kids
- Support Team CMT with a donation
Team CMT is group of athletes dedicated to raising awareness about Charcot-Marie-Tooth by participating in athletic events around the world. Team CMT members support, encourage and in some cases, live with the effects of CMT themselves or in their families. The group of involved individuals grows each day in response to increasing awareness of and people who live with CMT. Join »
Team CMT Kids is our junior varsity team, a group of young activists who are getting involved to support others. They hold events at school and in their community to raise awareness and raise money for CMT research. Join »
About CMT
A degenerative, often debilitating muscular disease, Charcot-Marie-Tooth Disease or CMT, affects more than 2.6 million people worldwide. It affects the nerves that carry information from the brain and spinal cord to the rest of the body. Muscles may lose their normal function and sensation in lower legs or feet, or hands or arms.
In many cases, doctors tell patients that they shouldn’t run or workout. Don’t tell members of Team CMT that. In fact, physical activity in their cases, has helped stem the loss of muscle control that accompanies the disease.
thx for the heads up. would like any new info that comes along. have been
diagnosted with charcot-marie-tooth type 2, gbs, cidp all at the kc va med ctr. am taking lyrica but not
much effect.
Can others join Team CMT?
Absolutely! Feel free to email the team run4cmt@yahoo.com. We welcome new team members!
Pingback: Barb Vonada--Lives, runs and serves with Charcot-Marie-Tooth
For all those increasing CMT awareness, feel free to reach out so we can profile your dedication and love for exercise. It will help others. You are all truly inspiration and your stories needs to be told. Thank you.
Pingback: Coaching athletes with Charcot-Marie-Tooth
Pingback: Di Billick runs 10K for Team CMT
Pingback: Team CMT leader finishes second in Boston Marathon
Hi, I was wondering what kind of support to the knees and foots does some members of the team uses during running? I would like to start running again but I think this won’t be good for my knees and I easily sprain my ankles. Also is there some advice for shoes?(nike running shoes maybe? that offer a bit support?)
Thanks
I wear custom made orthodics done by my podiatrist. He is a long distance runner. They support my feet and put them in a neutral position.
A sports medicine clinic could probably do a referral for you
Pingback: HNF rides in Bike New York to raise awareness of Charcot-Marie-Tooth
Pingback: Alyson O'Connor Fitness Instrutor, Fire Fighter with Charcot-Marie-Tooth, personal profile joins Team CMT
Looking for any info on Charcot-Marie-Tooth as my husband has it and is not getting much info from his Dr. Found this website and just wanted to try.