WHEN: September 17, 2014 (7-8:30 p.m. EST)
– Jeff Levenson (Adult Polyglucosan Body Disease Foundation)
– Jack Johnson (Fabry Support & Information Group)
– Courtney Hollett and Lori Sames (Hereditary Neuropathy Foundation)
– Dr. Jinny Tavee (Cleveland Clinic Lerner College of Medicine)
– Dr. Edwin Kolodny (NYU)
Of the over 100+ different types of neuropathies impacting millions in the U.S. alone, there are several inherited neuropathies that are considered “ultra-rare.” If you have a ultra rare form of CMT or related neuropathy this discussion could be for you.