Join Team CMT
Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).
By joining Team CMT and participating in an event you will help us fund research and programs for Charcot-Marie-Tooth. Examples of past event: running event, poker night, paint night, Card party, golf outing, letter writing campaign and more.
3 Ways to Join
1. Participate in an athletic event in your Community
- Register with Team CMT (Click "Register" button below - opens in a new window.)
- Receive a link & directions on creating a fundraising page
- Share link with family & friends
- Email [email protected] for questions or marketing support.
Upcoming Events
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Past Events
Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York
The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.
Team CMT: Monthly Family 5K Fun Run
Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
Fundraiser for CMT Awareness a Huge Success
Almost 10 now, Erin was diagnosed Charcot-Marie-Tooth (CMT) four years ago. Over those four years there have been numerous trips to Boston for treatment and surgery.
July 28, 2012: Hamptons Spin-a-thon & Party!
The Hereditary Neuropathy Foundation (HNF) is thrilled to partner with B East Amgansett, NY and The Breakwater Yacht Club, Sag Harbor, New York, for our Fifth Annual Spin for the Cure.
A Great Ride at Bike New York
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
3. Host "Your Own" Event
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more! Choose from one of our past events below and email [email protected] for details, or submit your own!
Past events:
- Spin for a Cure
- Poker Night
- Set Sail for CMT
- Card Party
- Golf Outing
- Go-kart Party
- Cocktail Party
- Bake Sale
- Clay shoot
- Paint Night
- Gala & Auction
Submit your own Event!
Posts related to events and Team CMT Members
From our Blog
Special Events
Margie’s Special Birthday Wish
Your donation will go to critical research that will help cure Charcot-Marie-Tooth (CMT), a progressive neuromuscular disease.
Patients Helping Themselves With The Global Registry for Inherited Neuropathy
In general, the collection, analysis and dissemination of data on disease progression and patient responses to long-term disease management strategies in registries represents a valuable way to improve understanding of the disease and keep medical professionals up to date on the latest advances.
Curry Turkey Salad Sliders
Author: A Passionate Plate
Serves: 8 sliders
A great way to use up leftover holiday turkey. If hazelnuts are not available, use another nut of your choice, such as almonds, walnuts or pecans.
Make Ahead Mashed Potatoes
Author: A Passionate Plate Serves: 10-12
Ingredients
5 lbs. russet style potatoes, peeled and cut into 2″ chunks
8 oz. cream cheese, softened
1 cup sour cream
salt & pepper (white or black) to taste
4 Tbsp. butter
Turkey Chowder
cups each diced carrot, celery, onion and potato
3 Tbsp. olive oil
¼ cup flour
2 quarts chicken stock
1 lb. bag frozen corn
4 cups cooked turkey, diced
3 Tbsp. soy sauce
3 cups shredded cheddar cheese
1 can evaporated skim milk
1 tsp. crushed red pepper
2 Tbsp. fresh thyme, chopped
Holiday Cranberry Sauce
Author: A Passionate Plate
Serves: 7 half pint jars
SUPPLIES:
7 – ½ pint canning jars, lids and bands
Canning water bath pot, with rack, filled with 5 inches of water
Pumpkin Marble Cheesecake
Author: A Passionate Plate – from Ray’s Boathouse Seafood Secrets of the Northwest cookbook
Serves: 12
You will need a 9″ springform pan, foil and a large roasting or baking pan for this recipe. The recipe is not hard to make, but cooking time is nearly 2 hours, so be sure allow plenty of time in the kitchen.
Ingredients
Bernadette Released
On Tuesday, September 17th 2013, the world changed for the better – just a little bit. It was the day that Bernadette, the first full-length documentary on Charcot Marie Tooth disease, was released. Not only that, but it kicked of with a very special premiere at the ArcLight Cinemas Theatre in Hollywood.
Caramel Corn Chocolate Chip Cookies
“Sometimes me think ‘what is a friend?’ and then me think… friend is what last chocolate cookie is for.” You know the voice – it’s Cookie Monster, one of my favorite Sesame Street characters. “Me want cookie! Me eat cookie!
Hot Off the Press
Research on CMT is global, and covers both laboratory and clinical studies. It is therefore critically important to realize we should be aware of what is happening elsewhere as well as in the USA because it can have implications for what we do and fund.