Join Team CMT
Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).
By joining Team CMT and participating in an event you will help us fund research and programs for Charcot-Marie-Tooth. Examples of past event: running event, poker night, paint night, Card party, golf outing, letter writing campaign and more.
3 Ways to Join
1. Participate in an athletic event in your Community
- Register with Team CMT (Click "Register" button below - opens in a new window.)
- Receive a link & directions on creating a fundraising page
- Share link with family & friends
- Email [email protected] for questions or marketing support.
Upcoming Events
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Past Events
June 3, 2012: Wine, Beer and Vodka Tasting
Join us on Sunday, June 3, 2012 in Wolcott, CT for a Wine, Beer and Vodka tasting to raise money and awareness of Charcot-Marie-Tooth.
May 5, 2013: Five Boro Bike Tour
HNF is thrilled to have been chosen this year as a Charity Partner for the TD Bank Five Boro Bike Tour.
December 1-3, 2011 – Champions for Charity
For the the first time ever, the Hereditary Neuropathy Foundation will participate in Americana Manhasset and Wheatley Plaza’s Champions for Charity®.
AANEM conference
Hereditary Neuropathy Foundation sponsored a course on CMT as part of the annual meeting of the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM).
September is CMT Awareness Month
CMT Awareness Month activities
3. Host "Your Own" Event
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more! Choose from one of our past events below and email [email protected] for details, or submit your own!
Past events:
- Spin for a Cure
- Poker Night
- Set Sail for CMT
- Card Party
- Golf Outing
- Go-kart Party
- Cocktail Party
- Bake Sale
- Clay shoot
- Paint Night
- Gala & Auction
Submit your own Event!
Posts related to events and Team CMT Members
From our Blog
Special Events
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases.
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases.
Joseph Torello: HNF Supporter and lives daily with CMT
Joe is an active member of Team CMT and we appreciate all he does for HNF. He has been busy performing, raising awareness and exercising for a cure! While Joe was performing The Music Man at Philadelphia’s Walnut St. Theatre
Meet your Team CMT Manager
I was diagnosed with CMT type 1a in August of 2010. I was relieved to put a name to symptoms I’ve had my whole life.
NYC bike ride to highlight rare neurological disorder
Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.
Join Us for a Private Screening of Bernadette: January 29th in New York City
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
HNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014
The Hereditary Neuropathy Foundation (HNF) has been chosen as the Charity Partner for the MetroTex Charitable Trust Run for Fun.
HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
TEAM CMT & CHRIS WODKE
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.
Personal Profile: Estela Lugo, Designing Décor
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
Running for Three Generations with CMT
These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease