CATEGORIES: GRIN Patient Registry | Pain

ABCs of CMT Pain Management Guide

by | Dec 12, 2023 | 0 comments

ABCs of CMT Pain Management Guide

The Hereditary Neuropathy Foundation is thrilled to introduce the “ABCs of CMT Pain Management,” a comprehensive guide that is a direct product of the Global Registry for Inherited Neuropathies (GRIN) initiative. This guide embodies the power of collective stories through patient-reported data and a resolute commitment to reshaping the narrative of pain in CMT.

HNF’s robust ABCs of CMT Pain Management Guide consists of over 80 pages of pain management options broken down into the categories of nutrition, exercise, topicals, supplements, prescription, holistic, injections, surgery, and more!

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Global Registry For Inherited Neuropathies: Your Questions Answered

Global Registry For Inherited Neuropathies: Your Questions Answered

by | Nov 12, 2015 | | 0 Comments

Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.

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