Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT.
Please browse their stories
below and help their cause.
On Tuesday, September 17th 2013, the world changed for the better – just a little bit. It was the day that Bernadette, the first full-length documentary on Charcot Marie Tooth disease, was released.
CMT4 (GDAP) Gene Therapy Research Program
Grace’s Courage Crusade
A passionate mission of the Sidoti/Caldarone family to support those living with Charcot-Marie-Tooth disease, which affects Marybeth Caldarone and her daughter Grace, who has CMT2A.
Iris Adler's H.E.L.P. Fund
Iris started this fund (Help Elliot Live Proud) after her grandson Elliot was diagnosed with CMT2A.
James has an extremely rare genetic mutation of the CNTNAP1 gene. James is unable to move like a “normal” child and is unable to use his voice. There is no cure.
Westerkamp Family's HNPP Fund
Michiel (dad) and Andy (son) Westerkamp both have HNPP and own Real Isolates, a leader in the cannabinoid industry.
An intimate 75-year journey of love, loss and refusal to surrender to a disabling disease.
Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services.
Sometimes physical challenges can dictate job and career paths.
Though CMT is rarely fatal, respiratory complications are one of the ways it’s possible to die from CMT.
Learn how this CMT1A patient uses the AlterG treadmill to manage her CMT symptoms.
Living with CMT can be a challenging journey. Here are some helpful tips.
Thoughts and tips for people considering, or may want to consider, going RV, either part-time or full-time
How to help with chronic pain
On December 1, 2016, Richard Cole (Rick) will be starting life on the road in an RV–and his road-trip will help spread awareness for Charcot-Marie-Tooth (CMT).
RVing blog Q&A