CATEGORIES: Living with CMT

Radio interview with Jenny Decker

by Courtney | May 9, 2016 | 0 comments

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Thank You for an Incredible 2026 CMT Clinical Trial Readiness Summit

by Courtney | May 21, 2026 | CMT Summit, Community, Featured, Living with CMT, Past Events | 0 Comments

Thank you for being part of our 2026 CMT Summit, our biggest gathering yet, with over 200...

CMT and Mental Health: What the Data Is Telling Us This May

by Courtney | May 18, 2026 | Emotional and Mental Health, Living with CMT | 0 Comments

CMT and Mental Health: What the Data Is Telling Us This May May is Mental Health Awareness...

The 2026 CMT Summit: What We Built Together

by Courtney | May 18, 2026 | CMT Summit, Featured, Living with CMT, Newly Diagnosed, Our Impact, Past Events, Patient-Focused Research | 0 Comments

The 2026 CMT Summit: What We Built Together Two days. One community that keeps growing. The...

MDA Durable Medical Equipment (DME) Grant Program

by Courtney | May 18, 2026 | Bracing, Living with CMT, Newly Diagnosed | 0 Comments

MDA Durable Medical Equipment (DME) Grant Program If you are living with CMT and need help...

A New Program for Men Living with CMT

by Courtney | May 18, 2026 | Living with CMT | 0 Comments

HNF Dream Team Ambassador Daniel Blevins is bringing something powerful to our community. HNF is...

HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference

by Courtney | Mar 17, 2026 | Advocacy, Awareness, Featured, GRIN Patient Registry, Living with CMT, Our Impact, TRIAD - Clinical Trial Readiness | 0 Comments

HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference The Hereditary...

Allison Moore Receives Award for Community Impact in Research

by Courtney | Jan 14, 2026 | Advocacy, Awareness, Featured, Gene Therapy, GRIN Patient Registry, Living with CMT, Research, Research and Critical Trials, TRIAD | 0 Comments

Muscular Dystrophy Association’s Legacy Awards Honor Innovators in Clinical and Scientific...

HNF Partners with MDA to Empower the CMT Community

by Courtney | Oct 13, 2025 | Community, Featured, Living with CMT, Webinars - Bracing, Webinars - Newly Diagnosed, Webinars - Research and Clinical Trials | 0 Comments

HNF Partners with MDA for CMT Series The Hereditary Neuropathy Foundation (HNF) was honored to...

The Nerve to Cure Event, Columbia Missouri

by Courtney | Aug 26, 2025 | GRIN Patient Registry, Living with CMT, Patient-Focused Research, Registry, Research and Critical Trials | 0 Comments

Join us Saturday, October 4th from 12pm – 8pm October 4, 2025
The Nerve to Cure
CMT Social + Science Day with Evening Fundraiser Dinner

GRIN is Changing the Game for CMT Research

by Courtney | Jul 14, 2025 | Featured, GRIN Patient Registry, Living with CMT, Registry, Research and Critical Trials | 1 Comment

6,000+ Strong Across 72 Countries — 2025 GRIN is Changing the Game for CMT Research! We’re...

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Radio interview with Jenny Decker

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