A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth. From training for the New York marathon, to being diagnosed with cancer, through chemotherapy that brought out severe symptoms of CMT, the story is one that will resonate with those who live with CMT and their friends and families. It’s a daily struggle, and yet it can serve as intense motivation as well. Allison has dedicated her life to building HNF into a support network for those like her, and this dedication has inspired many to join the cause.
Breathing Problems? What Do They Mean, Breathing Problems?
Though CMT is rarely fatal, respiratory complications are one of the ways it’s possible to die from CMT.