“Is this symptom related to CMT?”

This is a frequent question asked by many individuals living with CMT and their loved ones. Most of us are familiar with the most common symptoms of CMT, such as foot drop & hand weakness. However, many less-recognized symptoms can be just as disruptive to our lives but have not yet been studied or linked to CMT; the rarer the symptom, the more uncertain and isolated we may feel.

What participants are saying: 

This webinar was fantastic. I have felt alone in this land of CMT. I am going to look into testing. I am grateful. – Judith 

Thank you so much…I am looking forward to hearing back from you and appreciate such a wonderful night full of information!!! – Staci

Just wanna say thank you all for doing this for us! Appreciate this! – Traci

I LOVE these zoom CMT meetings and I thank you for all you do for us! – Leanne

Great job on the webinar last night! Very informative, I am sure it was valuable for all participants! – Peter

How do we know if our symptoms are CMT-related, and how can we drive research to better answer this question?

Watch HNF’s “Making Sense & Science of CMT Symptoms” webinar to find how to help further research for Charcot-Marie-Tooth.

Learn more on this topic

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HNF is Reshaping Drug Repurposing for CMT

HNF is Reshaping Drug Repurposing for CMT

HNF has partnered with Rarebase, a public benefit precision medicine company that has screened a large library of FDA approved small molecules to identify candidates for various types of CMT. Their tech-enabled drug discovery platform is called Function™. There are many published discoveries on the genetic cause of many types of CMT, including an understanding of the basic mechanism of disease and potential targets for FDA-approved drug repurposing. It is this understanding that allows HNF and Rarebase to target the genetic root cause of CMT.

The Key Role CMT Patients Play in Research

The Key Role CMT Patients Play in Research

Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.

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