CATEGORIES: Awareness

We’re Partnering With The Mighty!

by | May 3, 2017 | 0 comments

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty’s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site.

The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.

Here’s an example of the kind of stories on The Mighty: What Does It Mean to Be ‘Rare’? You Told Us.

9 Oscar-Nominated Films That Got Disease and Disability (Mostly) Right

To the Person Who Called Me ‘the World’s Ugliest Woman’ in a Viral Video

6 Things to Remember as a Patient in the Undiagnosed Diseases Program

8 Things I Wish I Knew When My Child Was Diagnosed With a Rare Disorder

We’re dedicated to helping people with Charcot-Marie-Tooth disease in their lives. With this partnership, we’ll be able to help even more people.

We encourage you to submit a story to The Mighty and make your voice heard.

Learn more on this topic

Related Blog Posts

Allison Moore is going to be published!

HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.

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