Welcome to the CMT Simplified Podcast by the HNF

by Courtney | Jan 7, 2025 | 0 comments

CMT Simplified is here to make staying informed about Charcot-Marie-Tooth disease (CMT) easier than ever!

Each 10-20 minute episode delivers:

Bite-sized updates on research breakthroughs
Easy-to-understand insights into treatments
Empowering knowledge—on the go!

Perfect for your busy life, CMT Simplified helps you stay informed, empowered, and up-to-date—one short episode at a time.

Episode #1: Wearables and CMT: Data That Makes a Difference

Patients are driving the future of CMT research, and YOU can be part of the change!

In this episode, learn how wearable technology, like BioSensics devices, empowers patients to:

Participate in clinical trials from home
Provide critical data for groundbreaking research
Help develop better treatments for the CMT community

Don’t forget to subscribe for updates! Together, we’ll simplify the path to a brighter future for CMT!

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New Strategic Alliance with Rare Disease Report (RDR)

by Allison Moore | May 27, 2015 | Awareness, CMT Update | 3 Comments

We are excited to announce our new collaboration with Rare Disease Report (RDR) to increase awareness of Charcot-Marie-Tooth (CMT) among the medical community. RDR’s website, e-newsletter, and print publication offers an independent voice for the Rare Disease Community.

Allison Moore is going to be published!

by Courtney | Sep 6, 2013 | Awareness, Research | 0 Comments

HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.

Global Registry for Inherited Neuropathy (GRIN) Vs the Rare Disease Clinical Research Network (RDCRN)

by Allison Moore | Jul 19, 2013 | Awareness, Featured, GRIN Patient Registry | 0 Comments

The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical...

The Neuropathy Association and the Hereditary Neuropathy Foundation: Co-Host the “Hereditary Neuropathies” Facebook Chat July 24th!

by Courtney | Jun 25, 2013 | Awareness | 2 Comments

The Neuropathy Association and the Hereditary Neuropathy Foundation are pleased to announce that we will be co-hosting a Facebook Chat on July 24th that focuses on better understanding the diagnosis, care and treatment of hereditary neuropathies.

WHAT IS CMT

TYPES OF CMT

PATIENT RESOURCES

CMT UPDATES

CMT CONNECT

CMT Research

TRIAD

GRIN PATIENT REGISTRY

PEDIATRICS & CMT

WHAT IS MITO

TYPES OF MITOS

MITO Faces

MITO Research

TRIAD - Mito

GRIN PATIENT REGISTRY

PEDIATRICS & MITO CMT

FDA

CLINICAL TRIALS

PATIENT-FOCUSED RESEARCH

EMERGING TECHNOLOGIES

GENETIC TESTING - CMT GENIE

MOVEMENT IS MEDICINE™

FACES OF CMT

INDUSTRY

HCPs/CENTERS OF EXCELLENCE

RESEARCH FUNDING

About HNF

OUR STORY

FOUNDATION LEADERSHIP

990's & ANNUAL REPORTS

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GRIN Registry

Facebook Fundraiser

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Welcome to the CMT Simplified Podcast by the HNF

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