CATEGORIES: Awareness
RARE Patient Advocacy Symposium

Global Genes To Host The 2018 RARE Patient Advocacy Symposium

by | Apr 25, 2018 | 0 comments

RARE Patient Advocacy Symposium

Global Genes, in partnership with the University of Pennsylvania School of Medicine Orphan Disease Center, will host the 2018 RARE Patient Advocacy Symposium in Philadelphia on May 19th, 2018.

This one-day agenda focuses on the patient’s role in the drug development process and is for both beginner and advanced advocates. There will be two tracks this year for several of the sessions and one track will be geared towards beginners and the second track will be a little more advanced. Approximately 150 attendees comprised of patient advocates, corporate, government, academia, and researchers are expected to participate in this year’s event.

Allison Moore, HNF’s CEO, will lead one of the sessions on: New and Continuing Roles for Patients in Research and Drug Development.

Location:

Sheraton University City Hotel

3549 Chestnut Street

Philadelphia, Pennsylvania 19104

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Related Blog Posts

Allison Moore is going to be published!

HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.

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