Participate or Host an event
It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research. The HNF staff will assist you in your efforts.
Learn about our events and co-host with us in your area!
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more!
Some past events: Spin for a Cure, Poker Night, Set Sail for CMT, Card Party, Golf Outing, Go-kart Party, Cocktail Party, Bake Sale, Clay shoot, Paint Night, Gala & Auction and more.
Upcoming Events
![Digital Health Technologies for Charcot-Marie-Tooth (CMT) Disease](https://www.hnf-cure.org/wp-content/uploads/2024/05/BIO-promo-1080x675.jpg)
Digital Health Technologies for Charcot-Marie-Tooth (CMT) Disease
Digital Health Technologies for Charcot-Marie-Tooth (CMT) DiseasePatients attending the Clinical Trial Readiness Summit will be eligible to participate in this two-week study. All participants will join the clinical researchers and HNF staff for a private dinner on...
![An Evening with Jose Porcel” – Long Island Fundraiser for CMT Research](https://www.hnf-cure.org/wp-content/uploads/2024/05/Screen-Shot-2024-05-01-at-9.03.17-AM-1080x675.jpg)
An Evening with Jose Porcel” – Long Island Fundraiser for CMT Research
José Porcel, the featured artist, is a flamenco virtuoso with a remarkable career spanning over 20 years.
![CMT Summit Session Topic: Is CMT Surgery Right for You?](https://www.hnf-cure.org/wp-content/uploads/2024/04/Pfeffer-summit-1080x675.jpg)
CMT Summit Session Topic: Is CMT Surgery Right for You?
Dr. Pfeffer will offer complimentary in-person surgery consultations at our summit.
![NEW CMT Summit Alert! Launch into CMT Clinical Trial Readiness with HNF!](https://www.hnf-cure.org/wp-content/uploads/2024/04/no-code-CMT-Clinical-Trial-Readiness-Summit-5-1080x675.jpg)
NEW CMT Summit Alert! Launch into CMT Clinical Trial Readiness with HNF!
Join us for HNF 2024 CMT Clinical Trial Readiness Summit. To be held June 7&8th in San Diego, CA.
![2024 CMT Roadshow Coming to a City Near You?](https://www.hnf-cure.org/wp-content/uploads/2024/03/CMT-Bioback.jpg)
2024 CMT Roadshow Coming to a City Near You?
Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank
Past Events
![Meet Michael Watkins – Team CMT Member](https://www.hnf-cure.org/wp-content/uploads/2023/01/Untitled-design-17-1080x675.jpg)
Meet Michael Watkins – Team CMT Member
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
Saturday April 18, 2015: Jillian’s Cure SUPERHERO 5K
Jillian’s Cure SUPERHERO 5K
Saturday, April 18, 2015
at 7:00am
111 Maiden Lane
Lexington, SC 29072
Wednesday, September 17th 7-8:30pm EST for a “Rare Neuropathies” Facebook Chat
FACEBOOK CHAT: “Rare Neuropathies: Getting Diagnosed, Getting Help”
WHEN: September 17, 2014 (7-8:30 p.m. EST)
WHERE: www.facebook.com/NeuropathyAssociation
![November 15, 2014: Havana Nights Fundraiser](https://www.hnf-cure.org/wp-content/uploads/2014/05/Zachgift.gif)
November 15, 2014: Havana Nights Fundraiser
Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.
Thursday, December 4 – Saturday, December 6: Champions for Charity Shop Til You Drop Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop
Hereditary Neuropathy is participating in the Americana Manhasset’s Champions for Charity®. From Thursday, December 4 through Saturday, December 6, over 70 participating Americana Manhasset and Wheatley Plaza stores will donate 25% of designated pre-tax purchases.
Special Events
Unstoppable Skyler Fisher: Triumphing Across Continents with CMT
In the fast-paced world of para triathlons, one name stands out among the rest: Skyler Fisher, a dynamic 19-year-old powerhouse representing Team USA.
TD Bank Five Boro Bike Tour
HNF is thrilled to have been chosen for the 14th year as a Charity Partner for the TD Bank Five Boro Bike Tour.
Bike for CMT Research | TD Bank Five Boro Bike Tour
HNF is thrilled to announce that we have been chosen as a charity partner for the TD Bank Five Boro Bike Tour for the 13th year in a row! This exciting event will take place on May 7, 2023, in the bustling city of New York. Riders will have the opportunity to traverse...
Meet Michael Watkins – Team CMT Member
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
Team CMT – 10 Years Strong
Team CMT Accomplishments and Founding Story
Telling Our Story
Lots of people have seen Chris Wodke in her Team CMT uniform but fewer have seen her in her other uniform, as a member of the National Ski Patrol (NSP).
Catching Up with Team CMT Member, Gabrielle Blakey
I felt like “The Little Engine That Could.” I decided that day that CMT does not define me, it’s just a part of me. Read Gabrielle’s inspiring story here!
Meet HNF’s Newest Team CMT Member, Lisa Mormann
“I may have Charcot-Marie-Tooth (CMT), but it does not have me.”
2019 Million Dollar Bike Ride
HNF will be participating in the Million Dollar Bike Ride for the 1st time this year on Saturday, June 8th in Philadelphia, PA.
An Evening For Charity
Join us on Saturday, April 6th at 7:00pm at CoolMess Roslyn, New York. All proceeds will go towards the TRIAD program.