Participate or Host an event
It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research. The HNF staff will assist you in your efforts.
Learn about our events and co-host with us in your area!
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more!
Some past events: Spin for a Cure, Poker Night, Set Sail for CMT, Card Party, Golf Outing, Go-kart Party, Cocktail Party, Bake Sale, Clay shoot, Paint Night, Gala & Auction and more.
Upcoming Events
CMT Biobank: Particpate today!
Are you ready to help drive real progress in CMT research? The Hereditary Neuropathy Foundation (HNF) is inviting individuals with a confirmed CMT diagnosis to participate in our CMT Biobank—a groundbreaking initiative accelerating the path to treatments and cures. By...
Join Us: James’ Scramble for a Cure
Join us for James’ Scramble for a Cure on July 2025, 2025 Tijeras Creek Golf Club, Tijeras Creek, Rancho Santa Margarita, CA All proceeds will go towards CNTNAP1 research. ABOUT THE DAY Registration opens at 11 am Lunch available for golfers 11 am - 1 pm Putting...
Past Events
Meet Michael Watkins – Team CMT Member
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
Saturday April 18, 2015: Jillian’s Cure SUPERHERO 5K
Jillian’s Cure SUPERHERO 5K
Saturday, April 18, 2015
at 7:00am
111 Maiden Lane
Lexington, SC 29072
Wednesday, September 17th 7-8:30pm EST for a “Rare Neuropathies” Facebook Chat
FACEBOOK CHAT: “Rare Neuropathies: Getting Diagnosed, Getting Help”
WHEN: September 17, 2014 (7-8:30 p.m. EST)
WHERE: www.facebook.com/NeuropathyAssociation
November 15, 2014: Havana Nights Fundraiser
Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.
Thursday, December 4 – Saturday, December 6: Champions for Charity Shop Til You Drop Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop
Hereditary Neuropathy is participating in the Americana Manhasset’s Champions for Charity®. From Thursday, December 4 through Saturday, December 6, over 70 participating Americana Manhasset and Wheatley Plaza stores will donate 25% of designated pre-tax purchases.
Special Events
Posts related to Team CMT Members
From our Blog
CMT Warriors Unite: Rock, Roll, & Make a Difference in San Antonio, TX
Event Details: San Antonio, TX: December 7-8, 2024 (5K, 10K, Half Marathon, Full Marathon)
Unstoppable Skyler Fisher: Triumphing Across Continents with CMT
In the fast-paced world of para triathlons, one name stands out among the rest: Skyler Fisher, a dynamic 19-year-old powerhouse representing Team USA.
TD Bank Five Boro Bike Tour
HNF is thrilled to have been chosen for the 14th year as a Charity Partner for the TD Bank Five Boro Bike Tour.
Bike for CMT Research | TD Bank Five Boro Bike Tour
HNF is thrilled to announce that we have been chosen as a charity partner for the TD Bank Five Boro Bike Tour for the 13th year in a row! This exciting event will take place on May 7, 2023, in the bustling city of New York. Riders will have the opportunity to traverse...
Meet Michael Watkins – Team CMT Member
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
Team CMT – 10 Years Strong
Team CMT Accomplishments and Founding Story
Telling Our Story
Lots of people have seen Chris Wodke in her Team CMT uniform but fewer have seen her in her other uniform, as a member of the National Ski Patrol (NSP).
Catching Up with Team CMT Member, Gabrielle Blakey
I felt like “The Little Engine That Could.” I decided that day that CMT does not define me, it’s just a part of me. Read Gabrielle’s inspiring story here!
Meet HNF’s Newest Team CMT Member, Lisa Mormann
“I may have Charcot-Marie-Tooth (CMT), but it does not have me.”
2019 Million Dollar Bike Ride
HNF will be participating in the Million Dollar Bike Ride for the 1st time this year on Saturday, June 8th in Philadelphia, PA.