The H.E.L.P. Fund was founded by Iris Adler.
Iris started this fund after her grandson Elliot (Help Elliot Live Proud) was diagnosed with CMT2A. Each year Iris orchestrates a letter writing campaign and lives by the motto, “Every dollar counts and every dollar adds up!”
She has raised over $500,000 for the Therapeutic Research in Accelerated Discovery Program (TRIAD) to support research for one of the most common forms of CMT2A.
In addition to the letter campaign, Iris hosts a Card Party Brunch which includes canasta and mahjong each year in the winter at Broken Sound Country Club in Boca Raton, Florida. She invites her H.E.L.P. supporters, many friends and members of CMT community for an incredible afternoon of card playing, lots of good food and drinks and an exquisite boutique and silent auction.
A Letter to All Grandparents
Calling all Grandparents (and Parents)!
It’s hard to believe that 11 years ago my grandson, Elliot, was diagnosed with
Charcot-Marie-Tooth (CMT) disease. After the age of seven, Elliot could not play soccer, ride his bike, or hike in the woods. Instead, he’s endured several surgeries and is struggling today to cope with his deteriorating condition. Elliot wears braces that extend to his knees, and the loss of agility makes it nearly impossible for him to enjoy activities that most young boys and men take for granted. After meeting Allison Moore, HNF’s CEO/ Founder, I partnered with the Hereditary Neuropathy Foundation and created a fund called H.E.L.P (Help Elliot Live Proud) specifically for research of Charcot-Marie-Tooth Type 2A. Since then, I’ve worked hard to raise money to cure and treat this little known disease. It has been a successful endeavor, but we still need to do more for research and to bring drugs to market! Allison has devoted her life to our little-known disease, which causes such distress. She has done an amazing job with new discoveries, information and making the world more aware of CMT. We are so close, really close, to eliminating and perhaps reversing the effects of Elliot’s CMT2A. What we discover for Elliot’s type will benefit all the variants of CMT. So if everyone donates (even a small amount), we will be on the road to raising enough to make this a reality.
You may choose to give specifically for CMT2A to the H.E.L.P. Fund.
Whatever you decide, please GIVE!
With gratitude, Iris Adler
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Calling all Grandparents (and Parents)!
Join Iris Adler as she continues fundraising for her grandson and the many others living with Charcot-Marie-Tooth Type 2A
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January 27, 2017 – Bridge/Brunch Fundraiser
Charity Card Party Brunch and Boutique
Please join us January 27, 2017 at 10:00 at the Broken Sound Country Club, Boca Raton Florida. Join us for an exquisite brunch and card party to benefit the H.E.L.P fund/HNF at Broken Sound Country Club in Boca Raton, FL.
H.E.L.P. Card Party CMT2A Fundraiser
HNF is proud to report that over $36,000 was raised for research for CMT2A at this annual event!
Save the Date: Friday January 29, 2016 Boca Raton, Florida to Benefit CMT Type 2
Charity Card Party Brunch and Boutique Please join us January 29, 2016 at 10:30 at Broken Sound Country Club, Boca Raton Florida. Join Board Members Iris and Nat Adler for an exquisite brunch and card party to benefit the H.E.L.P fund/HNF at Broken Sound...
A New Mouse Model for Charcot-Marie-Tooth (CMT2)
We were recently informed that The Jackson Laboratory (JAX, a nonprofit biomedical research institution headquartered in Bar Harbor, Maine) had taken delivery and will be distributing a newly generated CMT-related mouse model. The new model expresses mutant mitofusin 2, a mitochondrial membrane protein involved in mitochondrial fusion and regulation of vascular smooth muscle cell proliferation.
Sixth Annual Card Party Brunch
On January 23, 2015 dedicated H.E.L.P. (Help Elliot Live Proud) Fund supporters participated in the 6th Annual Card Party Brunch and Boutique at Broken Sound County Club, Boca Raton, Florida. Record numbers flocked into the picturesque country club for a day filled with gourmet food, raffles, cards and a silent auction! HNF Board member Iris Adler increased this event by 50 new faces this year!
HNF to fund promising research on Charcot-Marie-Tooth
HNF is committed to pursuing treatment and a cure for Charcot-Marie-Tooth disease, and we cannot fulfill this mission without your help.