IMPACT THAT MATTERS

Driving
CMT Research
with the
Patient’s Voice

With your help support love
nothing is impossible!

Drive Research

Drive Research

Turn your symptoms into science

Join Team CMT

Join Team CMT

Join the movement to make a difference for those living with CMT

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Pledge Monthly

Start your Monthly Gift of $10 today or consider the many other ways to give!

Research CMT

Research CMT

HNF has been conducting patient-focused research dating back to 2007.

Gift a Birthday

Gift a Birthday

Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.

Allison and Daniel Cohen

Welcome To The
Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.

What is CMT?

Genetic Testing

Patient Resources

Pediatrics & CMT

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About HNF

Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.

In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.

HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.

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From Our Blog

LATEST

Update on NMD Pharma Clinical Trial

Update on NMD Pharma Clinical Trial

NMD Pharma Initiates Phase 2 Study of NMD670 in Patients with Charcot-MarieTooth Disease Type 1 and 2 NMD Pharma A/S, a clinical-stage biotech company dedicated to developing novel and improved treatments for patients living with neuromuscular diseases, announces that...

CMT Biobank

CMT Biobank

The CMT Biobank is now open! Are we coming to a city near you? Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank. Your vital blood samples and de-identified GRIN data will be...

How Does CMT Affect You?

How Does CMT Affect You?

Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!

CMT Speak Out this Month with CMT (re)Post-its!

CMT Speak Out this Month with CMT (re)Post-its!

1. Select and save your favorite images below 2. Post and tag us with your own personal message across social media!   Use #CMTSpeakOut and #CMTWeGotThis1. Right Click2. Click "Save Image As"3. Sign into your social media account and post image and comment.Instagram:...

Featured

HNF Awards the inaugural HNF Clinical Translation Fellowship

HNF Awards the inaugural HNF Clinical Translation Fellowship

HNF Awards the inaugural HNF Clinical Translation Fellowship in the amount of $170,000 to Kayla Cornett, PhD We are thrilled to announce the establishment of the HNF Clinical Translation Fellowship, awarded to Kayla Cornett, PhD, a distinguished postdoctoral research...

Research Opportunity: CMT-SORD

Research Opportunity: CMT-SORD

Research Opportunity: CMT-SORD I am writing to you today because there is a research opportunity you may be eligible for. When you joined HNF’s Global Registry for Inherited Neuropathies (GRIN), you agreed to be contacted regarding these opportunities. Since 2001, the...

HNF Contributes CMTRN Data to C-Path’s RDCA-DAP

HNF Contributes CMTRN Data to C-Path’s RDCA-DAP

HNF Contributes CMTRN Data to C-Path’s RDCA-DAP, Strengthening Research Capabilities for Inherited Neuropathies Integration of CMTRN data into RDCA-DAP promises new insights into Charcot-Marie-Tooth disease and related neuropathies, fueling advancements in treatment...

Featured Webinars

Active Hands

Active Hands

Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.

CMT-Connect Pain Webinar

CMT-Connect Pain Webinar

New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.

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