Every dollar goes directly into the research pipeline — not overhead, not awareness campaigns.
Where we stand
24 years of infrastructure. Now we need speed.
HNF didn’t wait for pharmaceutical companies to notice CMT. We built the data, the models, and the relationships that made it impossible to ignore. What we need now is fuel.
24
Years dedicated exclusively to CMT
1st
Patient Group to hold an FDA Drug Development Meeting
17
Of TRIAD connecting academia, government and industry
Open
Access biobank, available to any qualified researcher
What we’ve built
The CMT Cure Accelerator
The infrastructure that makes a cure possible.
No other organization has built what HNF has — and every piece of it is actively accelerating the path to treatment.
GRIN Patient Registry: World’s largest IRB-approved CMT patient registry.
CMT Biobank: First open-access CMT biobank — biospecimens available to any qualified researcher, anywhere in the world.
FDA Patient-Focused Drug Development Meeting: The only CMT organization to independently organize and lead one.
Transgenic Rat Models: For CMT4A, CMT-SORD, and CMT2A — real translational research, not just theory.
TRIAD Network: 17 years connecting academia, government, and industry around CMT drug development.
Why now
The science is ready. We can’t afford to wait.
What brought us here was infrastructure, data, and a community that refused to wait. What carries us into the clinic is funding — so the science we’ve built can move from the lab to the people who need it most.
“None of us gets there alone.”
— Allison Moore, CEO & Founder, Hereditary Neuropathy Foundation
Make your gift today.
Every contribution goes directly into the pipeline. Choose an amount that is meaningful to you — no gift is too small, and none of us gets there alone.
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