CATEGORIES: Our Impact

2025 HNF CMT Summit & Wellness Retreat

by Courtney | Jan 10, 2025 | 0 comments

Reserve Your Summit Spot!
Experience the 2025 HNF CMT Summit & Wellness Retreat in Nashville, TN, April 24-26!

Dive into groundbreaking research and clinical trial readiness while rejuvenating with wellness workshops, fitness activities, and community connection.

Order of Events – See Full Agenda for Session and Details

Wednesday, April 23: Patients Participate in Clinical Evaluator Training (See agenda for details)
Thursday, April 24: Patients participate in the BioSensics Wearable Study + Clinical Evaluator Training Study (See agenda for details)
Thursday, April 24: Welcome Evening Reception
Friday, April 25: Research Summit (All Welcome)
Saturday, April 26: Patient Retreat for Health & Wellness (All Welcome)

Register Now

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MDA Awards Grant to HNF for Groundbreaking Digital Wearable Study on CMT!

by Courtney | Feb 3, 2025 | Clinical Trials, CMT Summit, Featured, Patient-Focused Research, Pediatrics & CMT, Research | 0 Comments

Exciting news for the Charcot-Marie-Tooth (CMT) community! The Hereditary Neuropathy Foundation...

Join Our CMT Summit Q&A Zoom

by Courtney | Jan 22, 2025 | Our Impact | 0 Comments

Have questions about HNF’s upcoming CMT Summit + Patient Retreat? We’re here to help! Join Us January 29th from 12:00pm – 1:30pm ET.

Alesta Therapeutics Advances ALE2 to Target Rare Forms of CMT

by Courtney | Jan 13, 2025 | Clinical Trials, Featured, Industry, TRIAD | 0 Comments

Early preclinical research indicates that ALE2 could effectively slow or halt the progression of these debilitating symptoms, offering new hope for patients with these rare forms of CMT.

Update on NMD Pharma Clinical Trial

by Courtney | Nov 19, 2024 | Clinical Trials, CMT Type - CMT1A, CMT Type - CMT1B, CMT Type - CMT1X, CMT Type - CMT2A, CMT Type - CMT2C, TRIAD | 0 Comments

NMD Pharma Initiates Phase 2 Study of NMD670 in Patients with Charcot-MarieTooth Disease Type 1...

HNF’s Wearable Tech Study Delivers Strong Results for CMT Clinical Trials

by Courtney | Oct 7, 2024 | Clinical Trials, TRIAD, TRIAD - Clinical Trial Readiness | 0 Comments

HNF’s Wearable Tech Study Delivers Strong Results for CMT Clinical Trials The Hereditary...

Seeking Participants for a New CMT Clinical Trial: A Chance to Help Advance Treatment

by Courtney | Oct 1, 2024 | Clinical Trials, CMT Type - CMT1A, CMT Type - CMT1X, CMT Type - CMT2A, TRIAD, TRIAD - Therapeutics | 2 Comments

Seeking Participants for a New CMT Clinical Trial (for the US only): A Chance to Help Advance...

Digital Health Technologies for Charcot-Marie-Tooth (CMT) Disease

by Courtney | May 15, 2024 | Clinical Trials, Research, TRIAD | 2 Comments

Digital Health Technologies for Charcot-Marie-Tooth (CMT) DiseasePatients attending the Clinical...

Breaking News for SORD Deficiency Patients

by Courtney | Feb 15, 2024 | Applied Therapeutics, Clinical Trials, CMT Type - SORD Deficiency, GRIN Patient Registry, Research, Research and Critical Trials, TRIAD - Clinical Trial Readiness | 0 Comments

The INSPIRE trial is a Phase 3 double-blind placebo-controlled registrational study evaluating the effect of once-daily (QD) oral govorestat (AT-007) in 56 patients aged 16-55 with SORD Deficiency in the US and Europe.

Breaking News: HNF to Host “Revolutionizing Clinical Trials” Panel at Bio 2024

by Courtney | Feb 5, 2024 | Clinical Trials, Emerging Technologies, Featured, Research, Research and Critical Trials | 0 Comments

HNF is thrilled to announce that we have been accepted to host a 1-hour panel discussion during the Bio International Convention in San Diego, CA, in June 2024.

HNF Partners with InformedDNA® on CMT Genie Project

by Courtney | Jan 10, 2024 | Community, Genetic Testing, GRIN Patient Registry, Our Impact, Registry, The CMT Genie | 0 Comments

a patient-initiated at-home genetic testing program, providing faster and more equitable access to critical genetic care for the CMT community and their health care providers.

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2025 HNF CMT Summit & Wellness Retreat

Order of Events – See Full Agenda for Session and Details

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