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Summit Agenda

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Movement is Medicine™ Virtual Summit 

9:00am – 2:30pm EST

 

What to bring for those participating:

  • Sturdy chair with no arm rests if possible
  • Light weights (1-5#, resistance bands, or a can of soup)
  • Open space, floor space, floor mat

9:00am – 9:05am

Resources & Contact Slideshow

9:05am – 9:15am

Housekeeping Moderator

  • Laura Patrick, Clinical Neuro Program Manager, Physical Therapist

9:15am – 9:30am

Welcome Remarks

  • Allison Moore, Founder/CEO, Hereditary Neuropathy Foundation (HNF)

9:30am – 10:15am

Keynote

  • Nivedita Jerath MD, MS, HNF Center of Excellence 

10:15am – 11:00am

The Brain-Changing Benefits of Exercise & Mindful Meditation

Session will start with a discussion regarding cardiovascular benefits for the body and mind. Attendees will participate in cardiovascular exercise followed by breathing and meditation exercises for your well being.

  • Matthew Marse, Exercise Physiologist
  • Jennifer Campbell, Clinical/Operations Manager at AdventHealth Sports Med and Rehab at Orlando Avenue, Speech Language Pathologist

11:00am – 11:15am

Break with Q&A

  • Laura Patrick, Clinical Neuro Program Manager, Physical Therapist

11:15am – 12:00pm

Therapy across the lifespan of the disease

This lecture will discuss when is the best time to begin therapy and check in with your therapist across the lifespan of the disease. Attendees will hear from a Physical Therapist, Occupational Therapist and a Speech Language Pathologist about what to expect in therapy and will leave with some takeaway exercises for each stage of the disease.

  • Allyson Demetriadis, Clinical Specialist in Neurologic Physical Therapy
  • Phoi Truong, Neurological Occupational Therapist
  • Jennifer Campbell, Speech Language Pathologist

(*Stretching will be included in this presentation*)

12:00pm -12:30pm 

Core & Balance

This 30-minute class will be a mix of core strengthening exercises with yoga style balance poses. Class will be modified to support all participants. Core strength is an important piece to maintain balance.

  • Matthew Marse, Exercise Physiologist

12:30pm – 1:00pm

Lunch Break 

Resources & Contact Slideshow

1:00pm-1:45pm 

Nutritional Workshop: Simple Tips for Eating Well

Many neurological diseases have been shown to have a major impact on an individual’s nutrition status. Because of this, these individuals are at an increased risk for malnutrition, micronutrient deficiencies and dehydration. Join Sherri Flynt, MPH, RD, LD, as she talks about the concerns with malnutrition and dehydration and which micronutrients are of special concern. She will also provide practical tips for ensuring proper nutrition and how to incorporate these tips into everyday life. 

  • Sherri Flynt, MPH, RD, LD

1:45pm – 2:15pm 

Strength Training

This 30-minute class utilizes therabands and weights for functional strength training moves to empower participants about the importance of strength training for CMT. Class will be modified to support all participants.

  • Bradley Elliott, Exercise Therapist 

2:15pm – 2:30pm  

Closing Remarks

  • Nivedita Jerath, MD, MS, HNF Center of Excellence  
  • Allison Moore, Founder/CEO, HNF  

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