Movement is Medicine™ Virtual Summit
9:00am – 2:30pm EST
What to bring for those participating:
- Sturdy chair with no arm rests if possible
- Light weights (1-5#, resistance bands, or a can of soup)
- Open space, floor space, floor mat
9:00am – 9:05am
Resources & Contact Slideshow
9:05am – 9:15am
Housekeeping Moderator
- Laura Patrick, Clinical Neuro Program Manager, Physical Therapist
9:15am – 9:30am
Welcome Remarks
- Allison Moore, Founder/CEO, Hereditary Neuropathy Foundation (HNF)
9:30am – 10:15am
Keynote
- Nivedita Jerath MD, MS, HNF Center of Excellence
10:15am – 11:00am
The Brain-Changing Benefits of Exercise & Mindful Meditation
Session will start with a discussion regarding cardiovascular benefits for the body and mind. Attendees will participate in cardiovascular exercise followed by breathing and meditation exercises for your well being.
- Matthew Marse, Exercise Physiologist
- Jennifer Campbell, Clinical/Operations Manager at AdventHealth Sports Med and Rehab at Orlando Avenue, Speech Language Pathologist
11:00am – 11:15am
Break with Q&A
- Laura Patrick, Clinical Neuro Program Manager, Physical Therapist
11:15am – 12:00pm
Therapy across the lifespan of the disease
This lecture will discuss when is the best time to begin therapy and check in with your therapist across the lifespan of the disease. Attendees will hear from a Physical Therapist, Occupational Therapist and a Speech Language Pathologist about what to expect in therapy and will leave with some takeaway exercises for each stage of the disease.
- Allyson Demetriadis, Clinical Specialist in Neurologic Physical Therapy
- Phoi Truong, Neurological Occupational Therapist
- Jennifer Campbell, Speech Language Pathologist
(*Stretching will be included in this presentation*)
12:00pm -12:30pm
Core & Balance
This 30-minute class will be a mix of core strengthening exercises with yoga style balance poses. Class will be modified to support all participants. Core strength is an important piece to maintain balance.
- Matthew Marse, Exercise Physiologist
12:30pm – 1:00pm
Lunch Break
Resources & Contact Slideshow
1:00pm-1:45pm
Nutritional Workshop: Simple Tips for Eating Well
Many neurological diseases have been shown to have a major impact on an individual’s nutrition status. Because of this, these individuals are at an increased risk for malnutrition, micronutrient deficiencies and dehydration. Join Sherri Flynt, MPH, RD, LD, as she talks about the concerns with malnutrition and dehydration and which micronutrients are of special concern. She will also provide practical tips for ensuring proper nutrition and how to incorporate these tips into everyday life.
- Sherri Flynt, MPH, RD, LD
1:45pm – 2:15pm
Strength Training
This 30-minute class utilizes therabands and weights for functional strength training moves to empower participants about the importance of strength training for CMT. Class will be modified to support all participants.
- Bradley Elliott, Exercise Therapist
2:15pm – 2:30pm
Closing Remarks
- Nivedita Jerath, MD, MS, HNF Center of Excellence
- Allison Moore, Founder/CEO, HNF