The Hereditary Neuropathy Foundation is thrilled to announce the launch of the first online health care provider directory that has ever been offered to this community to include comprehensive testing to certify health care professionals (HCPs).
HNF’s Health Care Provider Directory enables patients to research and find the HCPs who address the unique needs and considerations of those living with Charcot-MarieTooth (CMT) and other inherited neuropathies (INs). Participating HCPs can utilize the directory to find the information and resources to better serve the CMT and IN community.
Why did we decide to launch this directory now?
We are at a critical point in our understanding of these rare diseases. While the collaboration among academia, government, and industry has made great strides in developing advanced diagnostics and treatments for CMT and INs, there are still no cures.
Without a cure, patients of inherited neuropathies require a multidisciplinary approach for managing symptoms and maintaining quality of life. A CMT patient’s functionality, quality of life, and disease management depend on working with a team of HCPs, such as neurologists, physical therapists, pain specialists, orthotists, and other specialists.
Finding those HCPs has been especially challenging for the inherited neuropathy community. There hasn’t been a reliable resource available to find local HCPs who are familiar with the complexities of treating the whole person with CMT or INs.