CATEGORIES: CMT Update

Now GRIN is Accessible in 141 Different Languages!

by | Mar 9, 2015 | 4 comments

The Global Registry for Inherited Neuropathies (GRIN) has implemented Google Translate.  Why did we choose Google?  Because Google is leading the way in teaching computers how to interpret meaning, avoiding the traditional method of decoding language.

Software that decodes language can turn ‘kindergarten’ into ‘children garden’.  Instead, “Google mines existing translated material, recognizes how words or phrases typically correspond, and uses probability to deliver the best match based on context”.1

Having the ability to communicate with patients in 141 different languages will hopefully result in more patients joining GRIN globally to prepare for future clinical trials, for example, Pharnext’s PXT-3003 phase III clinical trials for later this year.

1Ref: https://translate.google.com/

Learn more on this topic

Related Blog Posts

Accepting Myself for Who I Am

Growing up, I always knew I was different than my friends. I couldn’t run fast, tripped often (the scars on my knees are a reminder), was lousy at any sports-related activity, and was generally weak and uncoordinated.

The Long Road to Diagnosis Renews Dedication to Advocacy

The Long Road to Diagnosis Renews Dedication to Advocacy

Growing up we called it “Steffi disorder.” My friends and family were as baffled as my expert neurologists. I had been diagnosed with typical Spiral Muscular Atrophy (SMA) as a toddler but never followed its progression; I never seemed to get weaker. My myriad of symptoms was distinctly different than anyone else’s I had ever met in a lifetime living in the neuromuscular community. I thought I might never find my true diagnosis, let alone others who share it with me.

A New Mouse Model for Charcot-Marie-Tooth (CMT2)

We were recently informed that The Jackson Laboratory (JAX, a nonprofit biomedical research institution headquartered in Bar Harbor, Maine) had taken delivery and will be distributing a newly generated CMT-related mouse model. The new model expresses mutant mitofusin 2, a mitochondrial membrane protein involved in mitochondrial fusion and regulation of vascular smooth muscle cell proliferation.

Sixth Annual Card Party Brunch

On January 23, 2015 dedicated H.E.L.P. (Help Elliot Live Proud) Fund supporters participated in the 6th Annual Card Party Brunch and Boutique at Broken Sound County Club, Boca Raton, Florida. Record numbers flocked into the picturesque country club for a day filled with gourmet food, raffles, cards and a silent auction! HNF Board member Iris Adler increased this event by 50 new faces this year!

Join the conversation

Leave a Comment

4 Comments

  1. Mahmoud abdelazim

    I suffering from cmt “hereditary motor neuropathy”
    I hope to join research and clinical trials

    Reply
  2. Lesa

    I have CMT in my hips legs and feet. Most of my mother’s side of the family has cmt and my grandmother’s side of family.

    Reply

Submit a Comment

Your email address will not be published. Required fields are marked *

Newsletter

Join for notifications on events, campaigns, & news