CATEGORIES: CMT Update | GRIN Patient Registry | Research and Critical Trials | TRIAD
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Hot off the Press: CMT Update

by | Feb 23, 2023 | 0 comments

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As we start the new year energized and ready to continue our mission of bringing treatments and cures for CMT, we have rebranded our CMT Update newsletter to feature our lead research programs including the GRIN patient registry, the HNF-funded research milestones that have been met, and how patients can continue to participate in the process. The CMT Update will continue to be published quarterly.

Winter 2023 CMT Update 

  • HNF is Reshaping Drug Repurposing for CMT
  • Pharnext Unveils the Latest Progress
  • Is this Symptom Related to CMT?
  • Join the Global Registry for Inherited Neuropathies
  • CMT Genie and more…

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Related Blog Posts

A New Mouse Model for Charcot-Marie-Tooth (CMT2)

by | May 27, 2015 | , , | 0 Comments

We were recently informed that The Jackson Laboratory (JAX, a nonprofit biomedical research institution headquartered in Bar Harbor, Maine) had taken delivery and will be distributing a newly generated CMT-related mouse model. The new model expresses mutant mitofusin 2, a mitochondrial membrane protein involved in mitochondrial fusion and regulation of vascular smooth muscle cell proliferation.

Sixth Annual Card Party Brunch

by | Mar 10, 2015 | , | 0 Comments

On January 23, 2015 dedicated H.E.L.P. (Help Elliot Live Proud) Fund supporters participated in the 6th Annual Card Party Brunch and Boutique at Broken Sound County Club, Boca Raton, Florida. Record numbers flocked into the picturesque country club for a day filled with gourmet food, raffles, cards and a silent auction! HNF Board member Iris Adler increased this event by 50 new faces this year!

Double Your Donation

by | Mar 9, 2015 | , | 0 Comments

Corporate matching gift programs are charitable giving programs setup by corporations in which the company matches donations made by employees to eligible nonprofit organizations. For example, if a donor works for Bank of America and donates $100 to the Hereditary Neuropathy Foundation, Bank of America will double the donation by also writing a check for $100.

Taking Matters Into Your Own Hands

by | Mar 9, 2015 | | 0 Comments

Do you have a rare form of CMT?

We were contacted recently from a patient with CMT2D who was looking for advice on how to make a difference. Our recommendations for all people with an ultra-rare form of CMT who want to get involved:

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