CATEGORIES: CMT Update | GRIN Patient Registry | Research and Critical Trials | TRIAD

Hot off the Press: CMT Update

by Courtney | Feb 23, 2023 | 0 comments

As we start the new year energized and ready to continue our mission of bringing treatments and cures for CMT, we have rebranded our CMT Update newsletter to feature our lead research programs including the GRIN patient registry, the HNF-funded research milestones that have been met, and how patients can continue to participate in the process. The CMT Update will continue to be published quarterly.

Winter 2023 CMT Update

HNF is Reshaping Drug Repurposing for CMT
Pharnext Unveils the Latest Progress
Is this Symptom Related to CMT?
Join the Global Registry for Inherited Neuropathies
CMT Genie and more…

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Using Zebrafish to Search for Therapeutics for CMT2A

by Courtney | May 16, 2014 | Research, TRIAD | 1 Comment

Research on CMT is global, and covers both laboratory and clinical studies. It is critically important to be aware of what is happening elsewhere as well as in the USA because it can have implications for what we do and fund at the HNF.

Hot off the press

by Courtney | Sep 13, 2013 | Past Events, University of Helsinki | 0 Comments

Some recent papers on Charcot-Marie-Tooth (CMT) disease go to show that we are steadily and impressively peeling back the complexity of the biology even though it is a relatively common rare disease with several thousand publications on it.

Global Registry for Inherited Neuropathy (GRIN) Vs the Rare Disease Clinical Research Network (RDCRN)

by Allison Moore | Jul 19, 2013 | Awareness, Featured, GRIN Patient Registry | 0 Comments

The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical...

“Fighter Mom’s” Join Forces

by Courtney | Feb 27, 2013 | CMT Update, GRIN Patient Registry | 0 Comments

Lori Sames and her husband Matt formed Hannah’s Hope Fund (HHF) following their youngest daughter’s diagnosis of Giant Axonal Neuropathy (GAN) in 2008. GAN is the most rare, and one of the most severe, forms of Inherited Neuropathy.

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Hot off the Press: CMT Update

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Using Zebrafish to Search for Therapeutics for CMT2A

Hot off the press

Global Registry for Inherited Neuropathy (GRIN) Vs the Rare Disease Clinical Research Network (RDCRN)

“Fighter Mom’s” Join Forces

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