HNF is planning the first ever Patient-Centered Charcot-Marie-Tooth Summit taking place on October 6, 2016 at the 3 West Club in New York City.
But, what do we mean by the term “Patient-Centered”?
“Patient-Centered” refers to the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders TOGETHER in a summit format.
This includes topic selection, panelist participation, audience engagement during Q&A sessions, and all the wonderful conversations in between speaker sessions and at our evening reception!
We believe that bringing all groups TOGETHER can influence research to be more patient centered, useful, trustworthy, and ultimately lead to life-style guidelines and treatments for CMT/IN, making a difference in your life TODAY.
This Summit is BY patients and FOR patients. We NEED patients to participate and make this Summit a S-U-C-C-E-S-S!
Take advantage of our Early Bird Discount and register NOW for HNF’s Patient-Centered Charcot-Marie-Tooth Summit!