What Do We Mean By “Patient-Centered”?

by | Jun 13, 2016 | 0 comments

PatientCenteredHNF is planning the first ever Patient-Centered Charcot-Marie-Tooth Summit taking place on October 6, 2016 at the 3 West Club in New York City.

But, what do we mean by the term “Patient-Centered”? 

“Patient-Centered” refers to the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders TOGETHER in a summit format. 

This includes topic selection, panelist participation, audience engagement during Q&A sessions, and all the wonderful conversations in between speaker sessions and at our evening reception!

We believe that bringing all groups TOGETHER can influence research to be more patient centered, useful, trustworthy, and ultimately lead to life-style guidelines and treatments for CMT/IN, making a difference in your life TODAY.

This Summit is BY patients and FOR patients. We NEED patients to participate and make this Summit a S-U-C-C-E-S-S! 

Take advantage of our Early Bird Discount and register NOW for HNF’s Patient-Centered Charcot-Marie-Tooth Summit!


Learn more on this topic

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Summit Speaker Spotlight: Dr. Robert Burgess

Dr. Burgess is on the scientific advisory board of the Hereditary Neuropathy Foundation, and also serves on the Cellular and Molecular Biology of Neurodegeneration grant review panel for the National Institutes of Health.

Summit Panelist Spotlight: Estela Lugo

A long-time member of the CMT community, HNF enlisted Estela to become a moderator for our CMT-Connect™ workshops. She has generously committed her time to help lead and teach other CMT patients in her community.

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