#SeptemberSelfieCMT For Charcot-Marie-Tooth Awareness Month

by | Sep 21, 2015 | 1 comment

Kate FBKate Farren is a high school senior who spent last summer with her aunt in New York.

Her Aunt Ally has Charcot-Marie-Tooth disease. Kate witnessed first-hand the struggles and challenges her aunt faced every single day living with CMT. She saw how difficult it was for her aunt to do simple tasks like opening a jar, or walking down the stairs.

But Ally isn’t just Kate’s aunt.

She is also HNF’s founder, Allison Moore.

Kate is on a mission to raise awareness for her aunt and the CMT community during September’s Charcot-Marie-Tooth Awareness Month by sharing the hashtag #SeptemberSelfieCMT on social media.

All you have to do is snap a selfie with #SeptemberSelfieCMT in the photo and share it on all your social media pages. Be sure to include the hashtag in your post, and tag The Hereditary Neuropathy Foundation so we can share it on our social channels too!

We are in the homestretch of CMT Awareness Month.

Come join Kate, HNF, and the CMT community for the #September SelfieCMT campaign.

Let’s increase awareness, raise research funds, and find a cure for CMT!

Learn more on this topic

Related Blog Posts

Allison Moore is going to be published!

HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.

Join the conversation

Leave a Comment

1 Comment

  1. Molle Connell

    WAY to Go KATE ! You Rock Girl ! Thanks for your inspiration and dedication in starting this campaign. I know many, many people with CMT, like me, are benefitting from your idea, and are smiling as they have read this post. (Most of us aren’t that great at leaving comments though, lol)


Submit a Comment

Your email address will not be published. Required fields are marked *


Join for notifications on events, campaigns, & news