The Hereditary Neuropathy Foundation sponsors events that serve multiple purposes. We inform, we teach, we raise money to find a cure. Here you’ll find out about them all, and maybe think about co-hosting with us in your area! Please contact [email protected] for additional information.
Please join us January 2015 10:30am at the Broken Sound Country Club, Boca Raton Florida. Join Board Members Iris and Nat Adler for an exquisite brunch and card party to benefit the H.E.L.P fund/HNF at Broken Sound Country Club in Boca Raton, FL. All proceeds will be donated to the Hereditary Neuropathy Foundation to support people living with Charcot-Marie-Tooth and to fund research into CMT type 2, which affects the Adler’s grandson Elliot.
BIKE NEW YORK – Sunday May 3, 2015
HNF is thrilled to have been chosen for the 3rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure. This year we were given 25 spots! Click here to register!
For more information contact [email protected] to be a part of the Five Boro Bike Tour to ride with the Hereditary Neuropathy Foundation, so dust off that Schwinn and meet us in the Big Apple!
9TH ANNUAL HNF GOLF EVENT: THE DICK SHARPE MEMORIAL GOLF OUTING – September 2015
We are pleased to announce the Hereditary Neuropathy Foundation’s 9th Annual Golf Event – the NEWLY NAMED – “DICK SHARPE MEMORIAL GOLF OUTING” – in memory of the recent passing of our dear friend, father & board member. Any inquiries: Co-chairs – Joy Andal Kaye ([email protected]) or Christine Panico ([email protected]). More details to follow!
GRACE’S COURAGE CRUSADE BRUNCH – November 2015
This annual event is simply amazing! Held at the Atlantic Beach Club, Newport, RI to support Grace’s Courage Crusade, a passionate mission of the Sidoti/Caldarone family to fund research for CMT Type 2, which affects Marybeth Caldarone and her daughter Grace. One of the premiere efforts of the Caldarones is the writing and publishing of Arlene On the Scene, a children’s chapter book which is spreading like wildfire across the country, building crucial awareness of Charcot-Marie-Tooth and how it can affect children and families. An exquisite brunch, raffle items and the famous dessert auction an event you won’t want to miss!
- Grace’s Courage Crusade Brunch by the Beach 2014
- The Hereditary Neuropathy Foundation and BioPontis Alliance for Rare Disease Partner to Develop Treatments for Charcot-Marie-Tooth
- Coaching Athletes with Charcot-Marie-Tooth
- Sneak Peak of Fall Newsletter: CMT Research Study Survey
- Wednesday, September 17th 7-8:30pm EST for a “Rare Neuropathies” Facebook Chat