1-855-HELPCMT (435-7268) [email protected]


The Hereditary Neuropathy Foundation sponsors events that serve multiple purposes.  We inform, we teach, we raise money to find a cure.  Here you’ll find out about them all, and maybe think about co-hosting with us in your area!

Please contact [email protected] for additional information.

MetroTex Charitable Trust Run For Fun Irving, Texas – Saturday May 3, 2014

The Hereditary Neuropathy Foundation (HNF) has been chosen as the Charity Partner for the MetroTex Charitable Trust Run for Fun. Questions: Contact Joyce Kelly at [email protected]. Click here to register!

BIKE NEW YORK – Sunday May 4, 2014

bikenyHNF is thrilled to have been chosen for the 3rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure. This year we were given 25 spots!

For more information contact [email protected] to be a part of the Five Boro Bike Tour to ride with the Hereditary Neuropathy Foundation, so dust off that Schwinn and meet us in the Big Apple!


Downing brothersWe are pleased to announce the Hereditary Neuropathy Foundation’s 8th Annual Golf Event – the NEWLY NAMED – “DICK SHARPE MEMORIAL GOLF OUTING” – in memory of the recent passing of our dear friend, father & board member – to take place at the prestigious North Hempstead Country Club (our new venue) in Port Washington, NY on Monday, September 22nd.  Any inquiries:  Co-chairs – Joy Andal Kaye ([email protected]) or Christine Panico ([email protected]).  More details to follow!


graceThis annual event is simply amazing!  Held at the Atlantic Beach Club, Newport, RI to support Grace’s Courage Crusade, a passionate mission of the Sidoti/Caldarone family to fund research for CMT Type 2, which affects Marybeth Caldarone and her daughter Grace.  One of the premiere efforts of the Caldarones is the writing and publishing of Arlene On the Scene, a children’s chapter book which is spreading like wildfire across the country, building crucial awareness of Charcot-Marie-Tooth and how it can affect children and families. An exquisite brunch, raffle items and the famous dessert auction an event you won’t want to miss!


Please join us January 2015 10:30am at the Broken Sound Country Club, Boca Raton Florida. Join Board Members Iris and Nat Adler for an exquisite brunch and card  party to benefit the H.E.L.P fund/HNF at Broken Sound Country Club in Boca Raton, FL.

All proceeds will be donated to the Hereditary Neuropathy Foundation to support people living with Charcot-Marie-Tooth and to fund research into CMT type 2, which affects the Adler’s grandson Elliot