Charcot Marie Tooth (CMT)

The Hereditary Neuropathy Foundation sponsors events that serve multiple purposes.  We inform, we teach, we raise money to find a cure.  Here you’ll find out about them all, and maybe think about co-hosting with us in your area!

Please conatct Courtney@hnf-cure.org for additional information.

BRIDGE/BRUNCH FUNDRAISER - March 8, 2013

Please join us March 8, 2013 at 10:30am at the Broken Sound Country Club, Boca Raton Florida. Join Board Members Iris and Nat Adler for an exquisite brunch and card party to benefit the H.E.L.P fund/HNF at Broken Sound Country Club in Boca Raton, FL.

All proceeds will be donated to the Hereditary Neuropathy Foundation to support people living with Charcot-Marie-Tooth and to fund research into CMT type 2, which affects the Adler’s grandson Elliot.

ARLENE SEQUEL AVAILABLE – March 26, 2013

Kids are always asking us, what will the sequel be about? Well, the story is about change: how to make it and how to take it. Arlene and her friends land in a heap of trouble when they try to lead a revolution to make Greenwood School more “green.” There are new characters: Mr. Goldberg, the new fifth grade teacher, and Arlene’s Uncle James, who is a little different, just like  Arlene. One really difficult change is that Arlene and Lauren’s friendship begins to dwindle.

Check out an excerpt from the book here. And don’t forget to keep us in mind for an author visit and presentation about disability and difference this semester. Just send us an email. There’s no charge and we’ll donate a copy of the books to your school library. And don’t forget to get your copy of Arlene, the Rebel Queen today!

The art of rebellion lives on!

BIKE NEW YORK – Sunday May 5, 2013

HNF is thrilled to have been chosen for the 3rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure. This year we were given 25 spots!

For more information contact Courtney@hnf-cure.org to be a part of the Five Boro Bike Tour to ride with the Hereditary Neuropathy Foundation, so dust off that Schwinn and meet us in the Big Apple!

8TH ANNUAL HNF GOLF EVENT:  THE DICK SHARPE MEMORIAL GOLF OUTING – September 26, 2013

We are pleased to announce the Hereditary Neuropathy Foundation’s 8th Annual Golf Event – the NEWLY NAMED – “DICK SHARPE MEMORIAL GOLF OUTING” – in memory of the recent passing of our dear friend, father & board member – to take place at the prestigious North Hempstead Country Club (our new venue) in Port Washington, NY on Thursday, September 26th.  Any inquiries:  Co-chairs – Joy Andal Kaye (joyinmanhasset@mac.com) or Christine Panico (aljoenat@optonline.net).  More details to follow!

GRACE’S  COURAGE CRUSADE  BRUNCH - November 3,  2013

This annual event is simply amazing!  Held at the Atlantic Beach Club, Newport, RI to support Grace’s Courage Crusade, a passionate mission of the Sidoti/Caldarone family to fund research for CMT Type 2, which affects Marybeth Caldarone and her daughter Grace.  One of the premiere efforts of the Caldarones is the writing and publishing of Arlene On the Scene, a children’s chapter book which is spreading like wildfire across the country, building crucial awareness of Charcot-Marie-Tooth and how it can affect children and families. An exquisite brunch, raffle items and the famous dessert auction an event you won’t want to miss!