Participate or Host an event
It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research. The HNF staff will assist you in your efforts.
Learn about our events and co-host with us in your area!
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more!
Some past events: Spin for a Cure, Poker Night, Set Sail for CMT, Card Party, Golf Outing, Go-kart Party, Cocktail Party, Bake Sale, Clay shoot, Paint Night, Gala & Auction and more.
Upcoming Events
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Past Events
November 15, 2014: Havana Nights Fundraiser
Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.
Thursday, December 4 – Saturday, December 6: Champions for Charity Shop Til You Drop Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop
Hereditary Neuropathy is participating in the Americana Manhasset’s Champions for Charity®. From Thursday, December 4 through Saturday, December 6, over 70 participating Americana Manhasset and Wheatley Plaza stores will donate 25% of designated pre-tax purchases.
Margie’s Special Birthday Wish
Your donation will go to critical research that will help cure Charcot-Marie-Tooth (CMT), a progressive neuromuscular disease.
Patients Helping Themselves With The Global Registry for Inherited Neuropathy
In general, the collection, analysis and dissemination of data on disease progression and patient responses to long-term disease management strategies in registries represents a valuable way to improve understanding of the disease and keep medical professionals up to date on the latest advances.
Curry Turkey Salad Sliders
Author: A Passionate Plate
Serves: 8 sliders
A great way to use up leftover holiday turkey. If hazelnuts are not available, use another nut of your choice, such as almonds, walnuts or pecans.
Special Events
Posts related to Team CMT Members
From our Blog
Catching Up with Team CMT Member, Gabrielle Blakey
I felt like “The Little Engine That Could.” I decided that day that CMT does not define me, it’s just a part of me. Read Gabrielle’s inspiring story here!
Meet HNF’s Newest Team CMT Member, Lisa Mormann
“I may have Charcot-Marie-Tooth (CMT), but it does not have me.”
2019 Million Dollar Bike Ride
HNF will be participating in the Million Dollar Bike Ride for the 1st time this year on Saturday, June 8th in Philadelphia, PA.
An Evening For Charity
Join us on Saturday, April 6th at 7:00pm at CoolMess Roslyn, New York. All proceeds will go towards the TRIAD program.
Author & Team CMT Founder Chris Wodke Releases Her Second Book
Author and Team CMT Founder Chris Wodke has released her second book, “Soup Sunday—A Journey to Healthy Living”.
Thank You and Congratulations To Team CMT Riders
On May 6, 2018, Team CMT conquered 42 miles of the TD Bank Five Boro Bike Tour through each of Manhattan’s five boroughs!
Catching up with Team CMT Member Katherine Crandall Symons
HNF catches up with Team CMT Member Katherine Crandall Symons
Meet the 2018 TD Bank Five Boro Bike Tour Team CMT
Here’s a snapshot of the inspiring Team CMT riders and why they are participating in this year’s TD Bank Five Boro Bike Tour.
Team CMT Members Capture National Titles
Team CMT now has two National Champions! Read more about Team CMT members Joy DeCaro Perry and Chris Wodke.
MightyMan Half Iron Distance Supports HNF
Join HNF at the MightyMan Half Iron Distance in Fort Pond, Montauk, NY October 1st.