Sunday, May 5, 2024
HNF is thrilled to have been chosen for the 14th year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure. This year we were given 10 spots! Team CMT members will have first dibs.
Questions? Email [email protected]
Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.
Grab your shoes and spin CRANK Style NYC!
When: Saturday, September 27, 2014
Where: 1658 3rd Avenue New York, NY 10128 (between 92nd & 93rd Street Upper East Side)
Time: 1:00 – 3:00 pm
Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.
I was diagnosed with CMT type 1a in August of 2010. I was relieved to put a name to symptoms I’ve had my whole life.
Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.
These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
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