TD Bank Five Boro Bike Tour

by | Nov 8, 2023 | 0 comments

Sunday, May 5, 2024

HNF is thrilled to have been chosen for the 14th year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure. This year we were given 10 spots! Team CMT members will have first dibs. 

Questions? Email [email protected]

Learn more on this topic

Related Blog Posts

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.

Member Alyson O’Connor Won’t Let Her CMT Stop Her!

Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.

Join the conversation

Leave a Comment

0 Comments

Submit a Comment

Your email address will not be published. Required fields are marked *

Newsletter

Join for notifications on events, campaigns, & news