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Coaching Athletes with Charcot-Marie-Tooth

Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it. Born and raised near the coast in Galveston, Texas, Morgan, 26, has been a competitive runner and swimmer since she was little. Four years ago, she began participating in triathlons. In 2009, as an undergrad at the University of North Texas, Morgan and her partner, Sean Thompson started a Youth Triathlon Team for 7-14 year olds. Known as the North TX Tri Team, they have remained together and still compete.

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.

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